{"id":187738,"date":"2016-09-06T04:38:49","date_gmt":"2016-09-06T11:38:49","guid":{"rendered":"http:\/\/disabilityvisibilityproject.com\/?p=187738"},"modified":"2026-02-12T17:22:09","modified_gmt":"2026-02-13T01:22:09","slug":"912-twitter-chat-assisted-suicide-bioethics-and-disabled-lives","status":"publish","type":"post","link":"https:\/\/disabilityvisibilityproject.com\/2016\/09\/06\/912-twitter-chat-assisted-suicide-bioethics-and-disabled-lives\/","title":{"rendered":"9\/12 Twitter Chat: Assisted Suicide, Bioethics, and Disabled Lives"},"content":{"rendered":"

Disability Visibility Project<\/strong>\u2122<\/strong> Twitter Chat<\/strong><\/h3>\n

Assisted Suicide, Bioethics, and Disabled Lives<\/strong><\/h3>\n

Guest Host: Ing Wong-Ward, <\/strong>Co-Collaborator, Project Value<\/strong><\/h3>\n

Monday, <\/strong>September 12, 2016<\/strong><\/h3>\n

4 pm Eastern (U.S.)<\/strong><\/h3>\n

The Disability Visibility Projec<\/strong>t is proud to partner with the Co-Collaborators of Project Value<\/strong> in a discussion about assisted suicide, ableism, bioethics, and disabled lives. Ing Wong-Ward<\/strong>, a Co-Collaborator of Project Value, will be the guest host in addition to other Co-Collaborators participating during the Twitter chat.<\/p>\n

Project Value launched this past July on Facebook featuring personal stories by disabled Canadians. The six Co-Collaborators of Project Value<\/strong> are Sandra Carpenter, Catherine Frazee, Audrey J. King, Jeffrey Preston, Tracy Odell, and Ing Wong-Ward<\/strong>. Their July 25, 2016 post<\/a> describes the mission and reason for this video series:<\/p>\n

As we enter complex discussion in Canada about doctor-assisted suicide, we worry that Canadians are only getting one side of the disability story \u2013 that death is a natural choice for these poor suffering disabled people. But this story doesn\u2019t speak to the experiences of many with disabilities.<\/p>\n

This project seeks to explore a different perspective; to share stories and experiences that contradict the narrative that disability is a fate worse than death.<\/p>\n

This is about projecting our value.<\/p>\n

Right now Project Value\u2019s videos are only on Facebook. Check out their videos here: https:\/\/www.facebook.com\/projectmyvalue\/<\/a><\/p>\n

How to Participate<\/h3>\n

Follow\u00a0@DisVisibility and @ingwongward on Twitter<\/p>\n

Use the hashtag\u00a0#ProjectValue<\/a> when you tweet. To follow the conversation from this chat, click on the \u2018Live\u2019 tab for this hashtag on Twitter.<\/p>\n

If you only want to respond to the questions, check\u00a0@DisVisibility<\/a>\u2019s timeline during the chat. The questions will be tweeted several minutes apart. It can be less overwhelming this way.<\/p>\n

Check out this explanation of how to participate in a chat by Ruti Regan: https:\/\/storify.com\/RutiRegan\/examplechat<\/a><\/p>\n

If you don\u2019t use Twitter and want to follow the conversation along in real-time,\u00a0check out the live-stream: http:\/\/twubs.com\/ProjectValue<\/a><\/p>\n

9\/12 Twitter Chat Questions<\/strong><\/h3>\n

Welcome to the #ProjectValue chat w\/ @DisVisibility & guest host @ingwongward. Please note: we will discuss suicide, ableism, & dying.<\/p>\n

Ableism (also known as disablism) is the discrimination or prejudice against people who have disabilities. #ProjectValue<\/p>\n

For a discussion on ableism & assisted suicide, check out this essay by the late Stella Young https:\/\/www.theguardian.com\/commentisfree\/2013\/oct\/18\/disability-euthanasia-assisted-dying<\/a> #ProjectValue<\/p>\n

The #ProjectValue chat may be triggering for many. Please practice self-care and feel free to take a break or leave if needed.<\/p>\n

If you respond to a question such as Q1, your tweet should follow this format: \u201cA1 [your message] #ProjectValue”<\/p>\n

Q1 In your experience, how does your society view disabled people like yourself and others in the disability community? #ProjectValue<\/p>\n

Q2 If you are a disabled person, how do YOU value your life? How are our lives valuable, unique and significant? #ProjectValue<\/p>\n

Q3 Does ableism undermine the way you see yourself? How does it impact the choices, services, and freedoms you have access to? #ProjectValue<\/p>\n

Q4 Many countries have assisted suicide\/dying laws or legislation in the works. How will these laws impact disabled people? #ProjectValue<\/p>\n

Q5 How do conversations about #AssistedSuicide miss the mark on understanding the lived experience of disability? #ProjectValue<\/p>\n

Q6 What are your thoughts on the framing of ‘choice’ ‘autonomy’ and ‘freedom’ in the #AssistedSuicide debate? Is it ableist? #ProjectValue<\/p>\n

Q7 Often disability is confused w\/ terminal illness or presumed to cause great suffering. Does this concern you? #ProjectValue<\/p>\n

Many bioethicists believe it is ethical to \u201cassist\u201d disabled people or infants to die given their ‘quality of life’\/prognosis #ProjectValue<\/p>\n

Q8 How do people\u2019s perceptions about our quality of life impact choices about #AssistedSuicide? What can be done about this? #ProjectValue<\/p>\n

Q9 What do you want as an alternate to #AssistedSuicide that provides the supports you need to live well? #ProjectValue<\/p>\n

#ProjectValue uses storytelling & social media as an advocacy tool.<\/p>\n

Q10 What are some other effective means re-framing narratives about disabled lives? What other tools & approaches are needed to push back?<\/p>\n

This concludes our chat! Please keep the convo going. Thank you to our guest host @ingwongward & all the collaborators of #ProjectValue!<\/p>\n

Additional links<\/strong><\/h3>\n

Catherine Frazee (2016). The Last Chapter. Ottawa Life Magazine. http:\/\/www.ottawalife.com\/2016\/06\/the-last-chapter\/<\/a><\/p>\n

Aaron Broverman. (August 10, 2016). Project Value Asserts Disability Is Not Worse Than Death. New Mobility: http:\/\/www.newmobility.com\/2016\/08\/project-value-asserts-disability-is-not-worse-than-death\/<\/a><\/p>\n

Harriet McBryde Johnson. (February 16, 2003). Unspeakable Conversations. New York Times: http:\/\/www.nytimes.com\/2003\/02\/16\/magazine\/unspeakable-conversations.html?pagewanted=all<\/a><\/p>\n

Christy Duan. (May 1, 2016).Choosing Hospital Over Heaven: A Life Worth Living\u2014Is death better than locked-in syndrome? Medpage Today: http:\/\/www.medpagetoday.com\/publichealthpolicy\/ethics\/57625<\/a><\/p>\n

Stella Young. (October 18, 2013). Disability – a fate worse than death? ABC Ramp Up: http:\/\/www.abc.net.au\/rampup\/articles\/2013\/10\/18\/3872088.htm<\/a><\/p>\n

What is unbearable? (August 6, 2016). The Economist: http:\/\/www.economist.com\/news\/science-and-technology\/21703359-some-data-about-emotional-issue-what-unbearable?fsrc=scn\/tw\/te\/pe\/ed\/whatisunbearable<\/a><\/p>\n

Bill Peace. (August 14, 2016). Assisted Suicide: A life-style Choice. Bad Cripple: http:\/\/badcripple.blogspot.com\/2016\/08\/assisted-suicide-life-style-choice.html<\/a><\/p>\n

Merrit Kennedy. (June 18, 2016). Canada Legalizes Physician-Assisted Dying. National Public Radio. http:\/\/www.npr.org\/sections\/thetwo-way\/2016\/06\/18\/482599089\/canada-legalizes-physician-assisted-dying<\/a><\/p>\n

Ian MacLeod. (June 27, 2016). \u201c\u2018My biggest fear is I will become trapped\u2019: Woman, 25, goes to court to overturn assisted-dying\u00a0restrictions.\u201d National Post: http:\/\/news.nationalpost.com\/news\/canada\/canadian-politics\/my-biggest-fear-is-i-will-become-trapped-woman-25-goes-to-court-to-overturn-assisted-dying-restrictions<\/a><\/p>\n

Liz Carr. (2016). Disabled People\u2019s Organizations Do Not Support Assisted Suicide! Not Dead Yet UK: http:\/\/notdeadyetuk.org\/disabled-peoples-organisations-do-not-support-assisted-suicide\/<\/a><\/p>\n

Julia Bryant. (March 11, 2016). California Becomes Fifth State to Pass Right to Die Legislation. Law Street Media: http:\/\/lawstreetmedia.com\/news\/california-becomes-fifth-state-pass-right-to-die-legislation\/<\/a><\/p>\n

Marilyn Golden. Why Assisted Suicide Must Not Be Legalized. Disability Rights Education & Defense Fund: http:\/\/dredf.org\/assisted_suicide\/assistedsuicide.html<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Disability Visibility Project\u2122 Twitter Chat Assisted Suicide, Bioethics, and Disabled Lives Guest Host: Ing Wong-Ward, Co-Collaborator, Project Value Monday, September 12, 2016 4 pm Eastern (U.S.) The Disability Visibility Project … Continue Reading 9\/12 Twitter Chat: Assisted Suicide, Bioethics, and Disabled Lives<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":187740,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[6701202],"tags":[159346,6722,5967,11830971,238541,2443,40576,10372239,2005041,2185238,168607,113093,81819,41129,49818,599182,1149],"class_list":["post-187738","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-guest-blog-posts","tag-ableism","tag-activism","tag-advocacy","tag-assisted-dying","tag-assisted-suicide","tag-canada","tag-disability","tag-disability-community","tag-disability-culture","tag-disability-history","tag-disability-rights","tag-discrimination","tag-facebook","tag-grassroots","tag-social-media","tag-twitter","tag-videos","post-has-thumbnail"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2016\/09\/hi-res-project-value.jpg?fit=992%2C744&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p4H7t1-MQ2","jetpack_likes_enabled":true,"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/187738","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/comments?post=187738"}],"version-history":[{"count":0,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/187738\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media\/187740"}],"wp:attachment":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media?parent=187738"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/categories?post=187738"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/tags?post=187738"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}