{"id":188087,"date":"2016-10-26T05:11:50","date_gmt":"2016-10-26T12:11:50","guid":{"rendered":"http:\/\/disabilityvisibilityproject.com\/?p=188087"},"modified":"2026-02-12T17:22:23","modified_gmt":"2026-02-13T01:22:23","slug":"1030-cripthevote-chat-healthcare","status":"publish","type":"post","link":"https:\/\/disabilityvisibilityproject.com\/2016\/10\/26\/1030-cripthevote-chat-healthcare\/","title":{"rendered":"10\/30 #CripTheVote chat: Healthcare"},"content":{"rendered":"<h3 style=\"text-align:center;\"><b>#CripTheVote Twitter Chat<\/b><\/h3>\n<h3 style=\"text-align:center;\"><b>Healthcare<\/b><\/h3>\n<h3 style=\"text-align:center;\"><b>Thursday, October 30, 2016<\/b><\/h3>\n<h3 style=\"text-align:center;\"><b>7-8:30 pm Eastern<\/b><\/h3>\n<h3 style=\"text-align:center;\"><b>Guest hosts: Ari Ne\u2019eman and <\/b><b>Maelee Johnson<\/b><\/h3>\n<p><span style=\"font-weight:400;\">Hosted by <strong>Andrew Pulrang<\/strong>, <strong>Gregg Beratan<\/strong>, and <strong>Alice Wong<\/strong>, #CripTheVote Twitter chats explored various policy issues important to people with disabilities this year. Our 13th Twitter chat will focus on healthcare and we are thrilled to have two guest hosts who are passionate about this subject: <strong>Ari Ne\u2019eman<\/strong> and <strong>Maelee Johnson<\/strong>.<\/span><\/p>\n<p><span style=\"font-weight:400;\">Since this will be our final chat before Election Day, it will be 90 minutes and chock-full of good stuff. You can find the questions for this chat in this post. <\/span><span style=\"font-weight:400;\">The Twitter chat will be archived in Storify for anyone who would like to see it in chronological order at a later date.<\/span><\/p>\n<h3><b>How to Participate<\/b><\/h3>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Follow<\/span><a href=\"https:\/\/twitter.com\/AndrewPulrang\"> <span style=\"font-weight:400;\">@AndrewPulrang<\/span><\/a><a href=\"https:\/\/twitter.com\/DisVisibility\"> <span style=\"font-weight:400;\">@DisVisibility<\/span><\/a><a href=\"https:\/\/twitter.com\/GreggBeratan\"> <span style=\"font-weight:400;\">@GreggBeratan<\/span><\/a> <a href=\"https:\/\/twitter.com\/aneeman\"><span style=\"font-weight:400;\">@aneeman<\/span><\/a> <a href=\"https:\/\/twitter.com\/Mae_DayJ\"><span style=\"font-weight:400;\">@Mae_DayJ<\/span><\/a> <span style=\"font-weight:400;\">on Twitter<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">When it\u2019s time, search <a href=\"https:\/\/twitter.com\/search?f=tweets&amp;vertical=news&amp;q=%23CripTheVote&amp;src=typd\">#CripTheVote<\/a> on Twitter for the series of live tweets under the &#8216;Live&#8217; tab to follow the full conversation.\u00a0<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">If you might be overwhelmed by the volume of tweets and only want to see the chat\u2019s questions, check @DisVisibility\u2019s tweets. Each question will tweeted 4-5 minutes apart.<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Use the hashtag<\/span> <span style=\"font-weight:400;\">#CripTheVote<\/span> <span style=\"font-weight:400;\">when you tweet. If you can\u2019t join us on 10\/30, feel free to tweet anytime before or after with the hashtag.<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">If you don\u2019t use Twitter, check out the live-stream:<\/span><\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/twubs.com\/CripTheVote\"><span style=\"font-weight:400;\">http:\/\/twubs.com\/CripTheVote<\/span><\/a><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Check out this explanation of how to participate in a chat by Ruti Regan: <\/span><a href=\"https:\/\/storify.com\/RutiRegan\/examplechat\"><span style=\"font-weight:400;\">https:\/\/storify.com\/RutiRegan\/examplechat<\/span><\/a><\/p>\n<h3><b>Questions for the 10\/30\/16 Twitter Chat<\/b><\/h3>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Welcome to our chat on healthcare w\/ guest hosts <\/span><a href=\"https:\/\/twitter.com\/aneeman\"><span style=\"font-weight:400;\">@aneeman<\/span><\/a><span style=\"font-weight:400;\"> &amp; <\/span><a href=\"https:\/\/twitter.com\/Mae_DayJ\"><span style=\"font-weight:400;\">@Mae_DayJ<\/span><\/a><span style=\"font-weight:400;\">! Please remember to use the<\/span> <a href=\"https:\/\/twitter.com\/search?f=tweets&amp;vertical=default&amp;q=%23CripTheVoteStories&amp;src=typd\"><span style=\"font-weight:400;\">#CripTheVote<\/span><\/a> <span style=\"font-weight:400;\">hashtag when you tweet<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Quick reminder: this chat will be 90 minutes instead of the usual hour. Feel free to take breaks!<\/span> <a href=\"https:\/\/twitter.com\/search?f=tweets&amp;vertical=default&amp;q=%23CripTheVoteStories&amp;src=typd\"><span style=\"font-weight:400;\">#CripTheVote<\/span><\/a><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">If you respond to a question such as Q1, your tweet should follow this format: \u201cA1 [your message] <\/span><a href=\"https:\/\/twitter.com\/search?f=tweets&amp;vertical=default&amp;q=%23CripTheVoteStories&amp;src=typd\"><span style=\"font-weight:400;\">#CripTheVote<\/span><\/a><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">During this chat, \u2018healthcare coverage\u2019 can refer to #Medicaid, #Medicare, employer-based insurance&#8230;#CripTheVote 1\/2<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">&#8230; insurance from a state or federal exchange, Veteran&#8217;s Health Admin., Children&#8217;s Health Insurance Program, or other #CripTheVote 2\/2<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q1 If you are willing, share with us the type of healthcare coverage you have &amp; how important it is to your life. #CripTheVote <\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q2 Have you faced any challenges or barriers in becoming eligible, affording, or keeping your current healthcare insurance? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q3 If you used to be uninsured or are currently uninsured, how does lack of coverage impact your life as a disabled person? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">In the last 2 debates, Trump said he would repeal the Affordable Care Act and many in the community #CripTheVote tweeted about it<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">The ACA requires insurance plans to cover preventive care and they cannot deny coverage based on pre-existing conditions #CripTheVote <\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q4 Describe how Obamacare changed your life (if it has). What are the strengths\/drawbacks about the ACA for disabled people? #CripTheVote <\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q5 What are your fears when politicians say they want to repeal the ACA? How would your life change if it was repealed? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Many disabled people go into medical debt or spend a lot $$$ for meds, therapies, hospital stays, supplies, DME, etc #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q6 What are some things you need for your health that aren&#8217;t covered? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q7 Finding a primary care doc can be hard. For disabled people who need specialists it can be tougher. Tell us your stories. #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q8 <\/span><span style=\"font-weight:400;\">Should Long Term Services and Supports be part of healthcare policy, or separate? Should integration be the goal? \u00a0<\/span><span style=\"font-weight:400;\">#CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q9 What&#8217;s your stance on legalization of medical marijuana? What other forms of pain relief do you rely on? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q10 What is missing in the conversation about the abuse of opioids &amp; prescription meds that non-disabled folks don&#8217;t get? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q11 Mental health care is often separate from local health systems in general. What changes can improve access to MH services? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q12 What are some changes or recommendations you&#8217;d like to make about medical treatment for specific disabilities? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q13 Only recently, clinical studies considered differences gender &amp; race. How can research be more inclusive of disabled ppl? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q14 The health disparities btwn disabled &amp; non-disabled ppl are shocking. What have you seen &amp; experienced? How can it change? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q15 Why do so many people associate disability w\/ poor health? How do you participate in wellness and physical activity? \u00a0#CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">Q16 What is your dream healthcare scenario? What would the system and services look like? How would it serve all people well? #CripTheVote<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">This ends our #CripTheVote chat on healthcare. Many thanks to everyone who participated. Please continue the convo!<\/span><\/p>\n<p style=\"padding-left:60px;\"><span style=\"font-weight:400;\">This Twitter chat will be archived in Storify later this evening. Look for the link with the hashtag #CripTheVote<\/span><\/p>\n<h3><b>Additional links<\/b><\/h3>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/kff.org\/health-reform\/issue-brief\/snapshot-of-where-hillary-clinton-and-donald-trump-stand-on-seven-health-care-issues\/\"><b>Snapshot of Where Hillary Clinton and Donald Trump Stand on Seven Health Care Issues<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">Kaiser Family Foundation, October 6, 2016<\/p>\n<p class=\"Lh(36px) Fz(25px)--sm Fz(32px) Mb(17px)--sm Mb(20px) Mb(30px)--lg Ff($ff-primary) Lts($lspacing-md) Fw($fweight) Fsm($fsmoothing) Fsmw($fsmoothing) Fsmm($fsmoothing) Wow(bw)\" style=\"padding-left:60px;\"><strong><a href=\"https:\/\/www.yahoo.com\/news\/medicaid-loses-stigma-fate-rides-stormy-election-072413454.html\">As Medicaid loses stigma, election may cloud its future<\/a><\/strong><\/p>\n<p class=\"Lh(36px) Fz(25px)--sm Fz(32px) Mb(17px)--sm Mb(20px) Mb(30px)--lg Ff($ff-primary) Lts($lspacing-md) Fw($fweight) Fsm($fsmoothing) Fsmw($fsmoothing) Fsmm($fsmoothing) Wow(bw)\" style=\"padding-left:60px;\">Associated Press, October 24, 2016<\/p>\n<p style=\"padding-left:60px;\"><a href=\"https:\/\/news.vice.com\/story\/opioids-chronic-pain\"><b>Treated Like Addicts<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">Christopher Zara, October 24, 2016, Vice News<\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/www.nytimes.com\/2016\/10\/15\/us\/health-care-insurance-exchange-obamacare.html?rref=collection%2Fsectioncollection%2Fhealth&amp;action=click&amp;contentCollection=health&amp;region=stream&amp;module=stream_unit&amp;version=latest&amp;contentPlacement=2&amp;pgtype=sectionfront&amp;_r=0\"><b>Health Care Law\u2019s Beneficiaries Reflect Its Strengths, and Its Faults<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">Abby Goodnough and Reed Abelson, October 14, 2016, New York Times<\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/www.rootedinrights.org\/the-public-health-statistic-that-fails-disabled-people\/\"><b>The Public Health Statistic that Fails Disabled People<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">Reid Knight, October 19, 2016, Rooted in Rights<\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/www.npr.org\/sections\/health-shots\/2016\/10\/17\/498270772\/how-gaps-in-mental-health-care-play-out-in-emergency-rooms\"><b>How Gaps In Mental Health Care Play Out In Emergency Rooms<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">Shefali Luthra, October 17, 2016, NPR<\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/www.hhs.gov\/healthcare\/\"><b>About the Affordable Care Act<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/www.commonwealthfund.org\/topics\/health-care-coverage\"><b>Healthcare Coverage and Access<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">The Commonwealth Fund<\/p>\n<p style=\"padding-left:60px;\"><a href=\"https:\/\/dredf.org\/healthcare-access\/\"><b>Healthcare Access<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">Disability Rights Education &amp; Defense Fund<\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/www.ncd.gov\/policy\/health-care\"><b>Health Care<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">National Council on Disability<\/p>\n<p style=\"padding-left:60px;\"><a href=\"http:\/\/www.cdc.gov\/ncbddd\/disabilityandhealth\/features\/unrecognizedpopulation.html\"><b>Reducing Health Disparities for People with Disabilities: A Public Health Challenge<\/b><\/a><\/p>\n<p style=\"padding-left:60px;\">Centers for Disease Control and Prevention<\/p>\n<h3><b>#CripTheVote<\/b><\/h3>\n<h4><b>Resources on voting and people with disabilities:<\/b><\/h4>\n<p><a href=\"http:\/\/disabilitythinking.com\/election-2016-cripthevote\"><span style=\"font-weight:400;\">http:\/\/disabilitythinking.com\/election-2016-cripthevote<\/span><\/a><\/p>\n<h4><b>#CripTheVote Facebook Page:<\/b><\/h4>\n<p><a href=\"https:\/\/www.facebook.com\/CripTheVote\/\"><span style=\"font-weight:400;\">https:\/\/www.facebook.com\/CripTheVote\/<\/span><\/a><\/p>\n<h4><b>A note on language and why we use the term \u2018crip\u2019<\/b><\/h4>\n<p><a href=\"http:\/\/disabilitythinking.com\/disabilitythinking\/2016\/3\/28\/cripthevote-notes-on-crip\"><span style=\"font-weight:400;\">http:\/\/disabilitythinking.com\/disabilitythinking\/2016\/3\/28\/cripthevote-notes-on-crip<\/span><\/a><\/p>\n<p><a href=\"https:\/\/twitter.com\/search?f=tweets&amp;vertical=default&amp;q=%23CripTheVote&amp;src=typd\"><span style=\"font-weight:400;\">#CripTheVote<\/span><\/a><span style=\"font-weight:400;\"> is a nonpartisan campaign to engage both voters and politicians in a productive discussion about disability issues in the United States, with the hope that Disability takes on greater prominence within the American political landscape. <\/span><\/p>\n<p><span style=\"font-weight:400;\">While #CripTheVote is a nonpartisan project, we understand that many people have already developed preferences for particular candidates. This is great&#8211;we only ask that everyone is respectful in their interactions with each other. Our primary focus here is on increasing engagement with disability issues as a part of American politics and on the need for that we are all in agreement!<\/span><\/p>\n<p><span style=\"font-weight:400;\">Please note we do not represent the entire disability community nor would we ever claim to do so. There are many ways to create social change and engaging in conversation is one approach.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>#CripTheVote Twitter Chat Healthcare Thursday, October 30, 2016 7-8:30 pm Eastern Guest hosts: Ari Ne\u2019eman and Maelee Johnson Hosted by Andrew Pulrang, Gregg Beratan, and Alice Wong, #CripTheVote Twitter chats &hellip; <a href=\"https:\/\/disabilityvisibilityproject.com\/2016\/10\/26\/1030-cripthevote-chat-healthcare\/\" class=\"read-more\">Continue Reading <span class=\"screen-reader-text\">10\/30 #CripTheVote chat: Healthcare<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":188089,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[6701202],"tags":[10629788,209814,3570709,337,391399,1460,316590,17445624,140023,69737,139996,5004,7383,1076582,398,50738,41572],"class_list":["post-188087","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-guest-blog-posts","tag-accessible-healthcare","tag-developmental-disabilities","tag-durable-medical-equipment","tag-health","tag-health-disparities","tag-healthcare","tag-long-term-care","tag-long-term-services-and-supports","tag-medicaid","tag-medicare","tag-medications","tag-mental-health","tag-pain","tag-political-participation","tag-politics","tag-voting","tag-voting-rights","post-has-thumbnail"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2016\/10\/export1.jpg?fit=416%2C312&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p4H7t1-MVF","jetpack_likes_enabled":true,"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/188087","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/comments?post=188087"}],"version-history":[{"count":0,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/188087\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media\/188089"}],"wp:attachment":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media?parent=188087"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/categories?post=188087"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/tags?post=188087"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}