{"id":472884,"date":"2020-08-26T06:13:59","date_gmt":"2020-08-26T13:13:59","guid":{"rendered":"https:\/\/disabilityvisibilityproject.com\/?p=472884"},"modified":"2026-02-12T17:19:31","modified_gmt":"2026-02-13T01:19:31","slug":"a-preface-to-advocacy","status":"publish","type":"post","link":"https:\/\/disabilityvisibilityproject.com\/2020\/08\/26\/a-preface-to-advocacy\/","title":{"rendered":"A Preface to Advocacy"},"content":{"rendered":"<p>Below is an excerpt from <a href=\"https:\/\/docs.google.com\/document\/d\/1SDomTEAcPhlM3DgZ73l4YGj9Q9N6liNjfKWHTQMmrZU\/edit?usp=sharing\"><em>A Preface to Advocacy: What You Should Know as an Advocate<\/em><\/a>, a guide by Erin Gilmer. You can read the entire document <a href=\"https:\/\/docs.google.com\/document\/d\/1SDomTEAcPhlM3DgZ73l4YGj9Q9N6liNjfKWHTQMmrZU\/edit?usp=sharing\">here as a Google doc.<\/a> Many thanks to Erin for sharing this resource with the Disability Visibility Project!<\/p>\n<h3><b>A Preface to Advocacy: What You Should Know as an Advocate<\/b><\/h3>\n<p>&nbsp;<\/p>\n<h4>Erin Gilmer<\/h4>\n<p>&nbsp;<\/p>\n<p><span style=\"font-weight: 400;\">There are a lot of amazing advocacy toolkits out there that teach people how to advocate. They include tools to help you form your advocacy goals, advice on how to contact legislators and convey your story, tips on how to testify, and more. But there isn\u2019t a lot of guidance on what it really means to be an advocate \u2013 the challenges you\u2019ll face, the ups and downs you\u2019ll experience, the realities of the commitment involved, the people skills that will impact your work, and the toll it advocacy can take.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">What follows are insights from advocates from every walk of life who shared what they wish they knew going into advocacy and what advice they\u2019d give to other advocates. They are based on responses to a tweet I sent out on August 18, 2019 asking:<\/span><\/p>\n<p><b>\u201cWhat is something you wish you knew before getting into advocacy? And what is a tip you&#8217;d give to someone who wants to start advocating?\u201d<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Over 100 people responded and I\u2019ve done my best to include all voices. Please note that including the responses here are not an endorsement of any person or their advocacy. Additionally, know that I purposefully am identifying people by their Twitter handles with any \u201cname\u201d put in parentheses. This is how people self-identify and I felt it was the most important way to convey their experiences.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This preface to advocacy has been divided into sections including:<\/span><\/p>\n<ul>\n<li><b>Committing to Advocacy<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Before you Decide to Commit<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Seeing the Bigger Picture<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Coming Prepared<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Committing to Those You Work With and Following Through<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>Advocacy Takes Time<\/b><\/li>\n<\/ul>\n<ul>\n<li><b>The Emotional Side of Advocacy<\/b><\/li>\n<\/ul>\n<ul>\n<li><b>Presenting Your Advocacy Issue<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Your Voice Matters<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">No Right Way to Advocate<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Authenticity in Telling Your Story<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Your Story\u2019s Impact<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Using Evidence and Data<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Knowing It\u2019s Okay Not to Know<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Mistakes<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Work Harder and Smarter, Not Louder<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>Political Realities<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Know Your Opponent<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">You May Be Used<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>Talking to People in Power<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Meetings and \u201cOne-Pagers\u201d<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Connecting in Person<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>Personalities<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Not Everyone Will Welcome You or Agree With You<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Advocating Can Get Ugly<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Allies<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Play to Your Strengths<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Mentorship<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>Credit Others, Pass the Mic, Bring Others With You<\/b><\/li>\n<\/ul>\n<ul>\n<li><b>Privilege, Intersectionality, and Marginalization<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Confronting Privilege<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Color\/Race\/Ethnicity<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>What it Means to \u201cWin\u201d<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Incremental and Unexpected \u201cWins\u201d<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Victories and Losses and the Fruits of Your Labor<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Moving on When You Aren\u2019t Making Progress<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Following Through After a \u201cWin\u201d<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Share the Wins<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>Personal Rewards<\/b><\/li>\n<\/ul>\n<ul>\n<li><b>Burnout and Keeping Your Strength Up<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Take Breaks<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Self-Care<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Find Outside Support<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<ul>\n<li><b>Miscellaneous Advocacy Tips<\/b><\/li>\n<\/ul>\n<ol>\n<li style=\"list-style-type: none;\">\n<ol>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Advocacy Expenses<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Employers and Advocacy<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Advocating as a Parent<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Other Legislative Advocacy Tips<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">The hope is this preface will empower any person entering the advocacy space to have the knowledge they need to make the biggest impact. The preface is also for seasoned advocates who will find commonality in their experiences, gather new perspectives, and help mentor those who join their efforts.<\/span><\/p>\n<p>&nbsp;<\/p>\n<h4>ABOUT<\/h4>\n<p><span style=\"font-weight: 400;\"><strong>Erin Gilmer<\/strong> is a health law and policy attorney. She has extensive experience in analyzing and crafting legislation in a vast array of issues and has worked with advocates worldwide to increase their effectiveness. She writes at <\/span><a href=\"http:\/\/www.healthasahumanright.wordpress.com\/\"><span style=\"font-weight: 400;\">www.healthasahumanright.wordpress.com<\/span><\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Below is an excerpt from A Preface to Advocacy: What You Should Know as an Advocate, a guide by Erin Gilmer. You can read the entire document here as a &hellip; <a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/08\/26\/a-preface-to-advocacy\/\" class=\"read-more\">Continue Reading <span class=\"screen-reader-text\">A Preface to Advocacy<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":472889,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[6701202],"tags":[6722,5967,632345,444672310,587152388,587152519,587152953,410114,587152449,587152764,587152469,1076582,817656],"class_list":["post-472884","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-guest-blog-posts","tag-activism","tag-advocacy","tag-community-organizing","tag-crip-the-vote","tag-disability-activism","tag-disability-advocacy","tag-legislative-advocacy","tag-online-activism","tag-organizing","tag-patient-advocacy","tag-peer-advocacy","tag-political-participation","tag-self-advocacy","post-has-thumbnail"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2020\/08\/Preface-to-Advocacy-by-Erin-Gilmer.png?fit=1024%2C512&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p4H7t1-1Z1a","jetpack_likes_enabled":true,"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/472884","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/comments?post=472884"}],"version-history":[{"count":0,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/472884\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media\/472889"}],"wp:attachment":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media?parent=472884"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/categories?post=472884"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/tags?post=472884"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}