{"id":474067,"date":"2021-02-21T22:13:58","date_gmt":"2021-02-22T06:13:58","guid":{"rendered":"https:\/\/disabilityvisibilityproject.com\/?p=474067"},"modified":"2026-02-12T17:19:17","modified_gmt":"2026-02-13T01:19:17","slug":"qa-with-troy-cross","status":"publish","type":"post","link":"https:\/\/disabilityvisibilityproject.com\/2021\/02\/21\/qa-with-troy-cross\/","title":{"rendered":"Q&#038;A with Tory Cross"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Social media can be trash but it\u2019s not *all* trash. I learn so much from people I follow on Twitter such as <\/span><a href=\"https:\/\/twitter.com\/queer_spice\"><span style=\"font-weight: 400;\">Tory Cross<\/span><\/a><span style=\"font-weight: 400;\">. Here is an interview with Tory on her work as a political organizer and the fight for vaccine equity in California.\u00a0<\/span><\/p>\n<h3><b>Interview with Tory Cross<\/b><\/h3>\n<p>&nbsp;<\/p>\n<h4><b>Please tell me a little about yourself!\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">Hi! I\u2019m Tory Cross (she\/her), and I\u2019m a 27 year old disabled queer survivor and a digital\/distributed organizer. I was diagnosed with <a href=\"https:\/\/www.healthline.com\/health\/ehlers-danlos-syndrome#symptoms\">Ehlers Danlos Syndrome<\/a> when I was 7 years old, and I was really lucky to be diagnosed so young since it takes most people decades. I was only diagnosed so young because it overlapped with my mom being diagnosed when she was in her early 30s. I also have migraines and <\/span><a href=\"https:\/\/my.clevelandclinic.org\/health\/diseases\/16560-postural-orthostatic-tachycardia-syndrome-pots\"><span style=\"font-weight: 400;\">POTS<\/span><\/a><span style=\"font-weight: 400;\"> and some mystery lung condition that we refer to as asthma and <\/span><a href=\"https:\/\/www.healthline.com\/health\/cptsd\"><span style=\"font-weight: 400;\">c-PTSD<\/span><\/a><span style=\"font-weight: 400;\"> from childhood trauma. I personally consider my c-PTSD a disability because it\u2019s had an enormous impact on my life but I\u2019d never tell anyone else how to think about their own mental health.<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Growing up as a queer disabled survivor in a terrifyingly white supremacist homophobic Christian-supremacist area was horrifying in every possible way, and I learned extremely early that if I didn\u2019t figure out getting out of there, I wouldn\u2019t make it very long. Especially because my hometown approached every problem as you either handled it through prayer or silence and gritted teeth. Silence and gritted teeth doesn\u2019t work very well when you break your back! (Literally, I broke my T12 vertebrae at some point during my childhood and didn\u2019t find out until college because I was just so completely disconnected from my body).<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I live in California with my partner and my two cats!\u00a0<\/span><\/p>\n<h4><b>I know you mostly from your work as a political organizer during the 2020 Presidential election. How did you get involved in organizing and what were your experiences like 2019-2020 including the run-off elections in Georgia?\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">I think to some extent I\u2019d always been organizing, I just didn\u2019t know that there was a name for it. I started electoral organizing in April 2019 specifically when I happened to see a tweet from <\/span><a href=\"https:\/\/peoplefirstfuture.com\/\"><span style=\"font-weight: 400;\">Secretary Juli\u00e1n Castro<\/span><\/a><span style=\"font-weight: 400;\">\u2019s organizing director about how to volunteer! I didn\u2019t really know that people could volunteer for candidates, and I loved how progressive Juli\u00e1n\u2019s platform was. I\u2019d been only sporadically working for two years before that because of overlapping health crises, and I was only working about 19 hours\/week when I started volunteering for Juli\u00e1n.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">It was amazing, to share space with progressive folks and to be able to contribute to a presidential campaign. I fell in love immediately! I had all these skills from being a disabled person online. I\u2019ve said before that everything I\u2019ve ever learned about organizing I learned from being a disabled queer survivor who was really isolated because of my health. Building community and communal power and strength in numbers online were all things I learned from Twitter and Facebook communities. Including <\/span><a href=\"https:\/\/twitter.com\/search?q=%23CripTheVote&amp;src=typed_query&amp;f=live\"><span style=\"font-weight: 400;\">#CripTheVote<\/span><\/a><span style=\"font-weight: 400;\"> really changed my idea of community and political power. <\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">For Juli\u00e1n, I helped with debate prep, with social media outreach to supporters, with social media policy dissemination. I got to consult on a few of his policies, including his policy for people with disabilities, which was just incredible. After he suspended his campaign, I was a Text Leader for <\/span><a href=\"https:\/\/www.warren.senate.gov\/\"><span style=\"font-weight: 400;\">Elizabeth Warren<\/span><\/a><span style=\"font-weight: 400;\">\u2019s campaign, and then I took a break for a couple months before volunteering with Texas Democrats and then joining the staff there through the general election. I then joined <\/span><a href=\"https:\/\/www.ossoff.senate.gov\/\"><span style=\"font-weight: 400;\">Jon Ossoff<\/span><\/a><span style=\"font-weight: 400;\">\u2019s runoff campaign for Senate in Georgia!\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I was really lucky that the people I worked with saw me, my whole self, and my experiences, and didn\u2019t try to make me anything I wasn\u2019t. It shouldn\u2019t come down to luck though. Everything I\u2019ve ever learned about organizing I learned from being a disabled queer survivor who was highly physically isolated because of my health. There\u2019s this misconception that online connections aren\u2019t real life, but I\u2019m a real person, and you\u2019re a real person, and we\u2019re talking online. That\u2019s real life! Disabled people are so talented at eliminating that fake line between IRL and online <\/span><a href=\"https:\/\/wakelet.com\/wake\/497abe1c-637d-432b-858f-3476bb207c33\"><span style=\"font-weight: 400;\">when it comes to community building<\/span><\/a><span style=\"font-weight: 400;\">. I think people who are able bodied or have never been really isolated from their community sometimes find it stilted or difficult to build across digital space, but it\u2019s such a skillset to be able to quickly relate to someone and to connect to them emotionally. Disabled people make great organizers. We\u2019re really good at this!!<\/span><\/p>\n<h4><b>What do you love about organizing and getting out the vote? Why does it matter?\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">So, I grew up in extremely rural Illinois in a VERY Republican district, the most Republican in Illinois and one of the most Republican in the Midwest. I was the weird really political kid in school and even in college, because growing up how I grew up &#8211; in a really impoverished place, in a really dangerous household, as a queer disabled kid hiding in the closet both literally and figuratively &#8211;\u00a0 I knew that there had to be the possibility for things to be better somehow. I didn\u2019t know how but I knew it had to be possible.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I fell in love with organizing because organizing is all about connecting with people and being part of them building the world they want to live in. I spent a lot of time talking to my therapist about if I was doing something wrong before I was on staff, by doing all that volunteer work instead of trying harder to get a job, and she looked at me and said \u201cYou\u2019re feeling fulfilled. That matters so much more.\u201d There\u2019s something enchanting about connecting with someone you don\u2019t know, hearing what their dreams are for themselves, for their children, for their communities, and then building community with them to build that world. I don\u2019t want to over glorify it &#8212; organizing is hard and brutal and sometimes absolutely heartbreaking. But every organizer has moments they return to, where a volunteer or a community member kind of sees the world open in front of them. Or at least that\u2019s how I experience it!<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">It\u2019s hard to put into words how much getting out the vote matters, especially when it comes to making voting and organizing accessible for disabled people. There are so many of us, and when we band together, we grow political power. That\u2019s something I 100% learned from <\/span><a href=\"http:\/\/cripthevote.blogspot.com\/\"><span style=\"font-weight: 400;\">Crip The Vote.<\/span><\/a><span style=\"font-weight: 400;\"> We can say, you know, we are here, we have power, we vote, you work for us. But it\u2019s also not enough for politicians or parties to just, like, point at disabled people and say \u201cgreat go vote!\u201d Even if it weren\u2019t the right thing to do for candidates and state parties and committees, it is politically advantageous for Democrats to dismantle barriers to voting for disabled people! Not all disabled people will vote for Democrats of course but this whole voting block is RIGHT THERE if candidates put in the effort to make it so we CAN vote. Politics is life and death for most people, and when most politicians talk about voting as a sacred duty, it doesn\u2019t make sense that so many barriers that could be removed stay in front of us.<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">That said, electoral power certainly isn\u2019t the only thing that matters, and it makes me so angry when there are people who talk about voting as the only option. So many communities cannot wait for every 4 years, and nothing made that more evident than 2020.\u00a0<\/span><\/p>\n<h4><b>How have you been coping so far in the past 11+ months into the pandemic in California?\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">It\u2019s been excruciating. There is so much pain throughout all of this. I have a very small family &#8211; only 5 family members &#8211; and every single one of them caught COVID. It\u2019s incredibly lucky that none of their cases were super serious, but the terror has been unbelievable. In November 2019, I started having severe trouble breathing, which I\u2019d never had before, and my doctors were pretty sure that I caught a virus that impacted my lung functioning. It happened before COVID was recorded in the US, so it certainly means that if I caught COVID, my risk of death is incredibly high. My partner is healthy and able-bodied but of course there\u2019s also the terror that if he caught it, that he wouldn\u2019t be okay. So I have walked out my front door 3 times since March 12, 2020 &#8211; once because of a kidney infection, once because mold exploded in our apartment, and once to get my flu shot. Our apartment is 700 sq. ft, plus like a 10 sq. ft. patio, and we have not left this box in almost a year.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Organizing really helped. The Trump administration left us to die. They left us to die. Which added to all the other atrocities in the past four years. So working to build power, to connect people, to find community, really helped with my mental health.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Also, therapy. So much therapy.<\/span><\/p>\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\">\n<p lang=\"en\" dir=\"ltr\">I have walked out my front door 3 times since March 11th. <br \/>Once for a kidney infection<br \/>Once because mold exploded in our apartment and I\u2019m very allergic<br \/>Once to get my flu shot <\/p>\n<p>That\u2019s the entire list.<br \/>I live in terror of dying.<a href=\"https:\/\/twitter.com\/hashtag\/HighRiskCA?src=hash&amp;ref_src=twsrc%5Etfw\">#HighRiskCA<\/a> <a href=\"https:\/\/t.co\/nKdxPz2NgN\">https:\/\/t.co\/nKdxPz2NgN<\/a><\/p>\n<p>&mdash; Tory Cross \ud83c\udf51 (@queer_spice) <a href=\"https:\/\/twitter.com\/queer_spice\/status\/1353966420250423296?ref_src=twsrc%5Etfw\">January 26, 2021<\/a><\/p><\/blockquote>\n<p><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script><\/p>\n<h4><b>How has the pandemic impacted your health and well-being?\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">There\u2019s all kinds of regular care I\u2019m supposed to get that I haven\u2019t had access to since last March. During a normal time, I see doctors (besides my therapist) approximately 5 times\/month, to care for the variety of medical needs that come from my disabilities. I haven\u2019t had a single one of those appointments.<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">The biggest health issue I had that I did not get adequate treatment for was a kidney infection in April 2020. I had a UTI that I didn\u2019t get treated because I couldn\u2019t go to primary care, and it rapidly infected my kidney. My partner and I sat outside of urgent care for three hours, trying to decide if it was worth the risk for me to get my kidney taken care of. I finally was in such excruciating pain I went inside, and they gave me some antibiotics and sent me on my way. The infection was resistant to the first round, and super thankfully the urgent care doctor called an EDS specialist before prescribing another round, because she almost prescribed me an antibiotic that is contraindicated for EDS because it can cause our tendons (and hearts!!) to rupture. I had to take a less effective antibiotic, and one urgent care doctor called me, saying I should go to the ER because they were so concerned that I would go septic and die, but the other had just called me to say not to go the ER unless it got worse, to weigh against the risk of catching COVID. I stayed home and luckily the antibiotics worked, but it is really something to have two urgent care doctors, fighting about which thing would be most likely to kill me.<\/span><\/p>\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\">\n<p lang=\"en\" dir=\"ltr\">I\u2019m a queer, disabled, high-risk California resident with lung problems so serious that I take 3 inhalers a day, and have to inhale every 3 hours.<\/p>\n<p>I am very likely to die if I get COVID. <\/p>\n<p>And now, because I\u2019m 27, we have no idea when I\u2019ll be able to get vaccinated.<a href=\"https:\/\/twitter.com\/hashtag\/HighRiskCA?src=hash&amp;ref_src=twsrc%5Etfw\">#HighRiskCA<\/a><\/p>\n<p>&mdash; Tory Cross \ud83c\udf51 (@queer_spice) <a href=\"https:\/\/twitter.com\/queer_spice\/status\/1353965912487981061?ref_src=twsrc%5Etfw\">January 26, 2021<\/a><\/p><\/blockquote>\n<p><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script><\/p>\n<h4><b>On January 25th<\/b><b> Governor Newsom of California announced that he would <\/b><a href=\"https:\/\/www.reuters.com\/article\/idUSL4N2K01TT\"><b>lift the regional stay-at-home orders<\/b><\/a><b> across the state <\/b><b>allowing counties to gradually re-open. In addition to this, there was a major change in vaccine eligibility guidelines in the next round that would go by age versus risk. What was your response to this? How did it make you feel?\u00a0\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">It broke me. It doesn\u2019t make any sense, and I have a Masters of Science in Public Health. All of the claims in the past year have been that California will be \u201cLed By Science.\u201d Meanwhile, the state lifted the regional stay-at-home orders shortly after LA changed their air restrictions so that crematoriums could process more death. It made no scientific sense on it\u2019s own and then to couple it with changing the vaccine eligibility to solely age-based? I was appalled. <\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Disabled people are dying en masse, especially disabled people of color. So many disabled people of color have talked about that the age-based eligibility is already discriminatory to people of color, including <\/span><a href=\"https:\/\/www.washingtonpost.com\/opinions\/black-americans-should-face-lower-age-cutoffs-to-qualify-for-a-vaccine\/2021\/02\/19\/3029d5de-72ec-11eb-b8a9-b9467510f0fe_story.html\"><span style=\"font-weight: 400;\">this really powerful piece<\/span><\/a><span style=\"font-weight: 400;\"> by Drs. Oni and Uch\u00e9 Blackstock regarding that Black Americans should face lower vaccine age cutoffs.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I cried and screamed for days. The original tiers gave me hope for the first time in so long, and then to have those removed without warning, without anything, just felt like the floor fell out from under me, like it fell out from under our entire community, the millions of disabled Californians hanging on by a thread.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">My first feeling was being despondent. It was excruciating. I\u2019m so tired of fighting for us to be alive. I took the day off. I stared at the wall for a long time. And then I saw you, Alice, <\/span><a href=\"https:\/\/wakelet.com\/wake\/5l0jl6dtU_LYG0rNRY6LW\"><span style=\"font-weight: 400;\">mobilize so fast<\/span><\/a><span style=\"font-weight: 400;\"> and I jumped right into it too. <\/span><a href=\"https:\/\/twitter.com\/queer_spice\/status\/1354622858580750337?ref_src=twsrc%5Etfw%7Ctwcamp%5Etweetembed%7Ctwterm%5E1354623801921658880%7Ctwgr%5E%7Ctwcon%5Es2_&amp;ref_url=https%3A%2F%2Fwakelet.com%2F\"><span style=\"font-weight: 400;\">I dug into digital organizing<\/span><\/a><span style=\"font-weight: 400;\">, and something that I had learned working in Georgia was that it\u2019s really effective to find organic conversations and communicate with those folks on how to push the Governor and the state Legislature and move forward.<\/span><\/p>\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\">\n<p lang=\"en\" dir=\"ltr\">For my <a href=\"https:\/\/twitter.com\/hashtag\/HighRiskCA?src=hash&amp;ref_src=twsrc%5Etfw\">#HighRiskCA<\/a> folks, the most impactful thing we can do right now is contact Gov Newsom\u2019s office with our experiences and show why disabled people need to be prioritized. Contact the governor here: <a href=\"https:\/\/t.co\/1VZkGkswiz\">https:\/\/t.co\/1VZkGkswiz<\/a><\/p>\n<p>&mdash; Tory Cross \ud83c\udf51 (@queer_spice) <a href=\"https:\/\/twitter.com\/queer_spice\/status\/1354622858580750337?ref_src=twsrc%5Etfw\">January 28, 2021<\/a><\/p><\/blockquote>\n<p><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script><\/p>\n<h4><b>On February 12, 2021, the state announced <\/b><a href=\"https:\/\/www.cdph.ca.gov\/Programs\/CID\/DCDC\/Pages\/COVID-19\/Provider-Bulletin-2-12-21.aspx\"><b>a change in vaccine prioritization<\/b><\/a><b>, allowing some high-risk groups after three weeks of pressure by various communities. What was your response to that announcement?\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">It was really hard. I was so grateful that our pressure had worked to some extent, but the list of who would be included was so short. The first information I saw about it didn\u2019t include anything about lung or breathing conditions! Like, Jesus, this is a respiratory illness. I was so happy for the people who would be on the list, but it was such a small percentage of the millions of disabled Californians, and it wouldn\u2019t be until mid-March, and rare conditions wouldn\u2019t be listed, and so much more. <\/span><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/02\/15\/joint-letter-to-community-vaccine-advisory-committee-ca-department-of-health\/\"><span style=\"font-weight: 400;\">It felt like a slap in the face.<\/span><\/a><span style=\"font-weight: 400;\"> We had to fight tooth and nail to get any of us reprioritized, and then it was such a limited list, and it was so much farther away than I\u2019d expected.<\/span><\/p>\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\">\n<p lang=\"en\" dir=\"ltr\">One of the many upsetting things about the COVID vaccination prioritization in CA is that I had to email my pulmonologist and say &#8211; no lung conditions were on the list, but maybe my BMI counts?<\/p>\n<p>Which meant calculating my BMI, an incredibly triggering thing for me.<a href=\"https:\/\/twitter.com\/hashtag\/HighRiskCA?src=hash&amp;ref_src=twsrc%5Etfw\">#HighRiskCA<\/a><\/p>\n<p>&mdash; Tor \ud83c\udf51 (@queer_spice) <a href=\"https:\/\/twitter.com\/queer_spice\/status\/1360470019780452355?ref_src=twsrc%5Etfw\">February 13, 2021<\/a><\/p><\/blockquote>\n<p><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script><\/p>\n<h4><b>One troubling aspect from the <\/b><a href=\"https:\/\/www.cdph.ca.gov\/Programs\/CID\/DCDC\/Pages\/COVID-19\/Provider-Bulletin-2-12-21.aspx\"><b>provider bulletin from the CA Department of Public Health<\/b><\/a><b> is the start date for vaccinations on March 15, 2021. What are some of your questions, concerns, and thoughts about their new guidelines?\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">That it starts with \u201cclinical judgment\u201d makes me so nervous. What does clinical judgment mean? Medical ableism, racism, misogyny, fatphobia, transphobia all run rampant and California medical providers are no exception. I\u2019m a fat queer disabled woman &#8211; would clinical judgment mean medical providers would decide it\u2019s not worth vaccinating me, because they don\u2019t see disabled people and fat people and queer people as having <\/span><a href=\"https:\/\/nobodyisdisposable.org\/vaccine-background-california\/\"><span style=\"font-weight: 400;\">lives worth living<\/span><\/a><span style=\"font-weight: 400;\">? The bulletin includes that the list of eligible conditions is subject to change. I would hope it could only get more expansive, but our eligibility has already been taken away once, so it certainly could happen again. How does this list work with getting vaccinated at major vaccine sites or at chain pharmacies instead of at our doctor\u2019s offices? What do we have to prove? There are so many questions and there have been no efforts by the state\u2019s administration to answer them or even to anticipate that we would HAVE questions.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">In contrast, for example, <\/span><a href=\"https:\/\/coronavirus.dc.gov\/vaccine\"><span style=\"font-weight: 400;\">Washington, DC<\/span><\/a><span style=\"font-weight: 400;\">, has a <\/span><a href=\"https:\/\/www.wusa9.com\/article\/news\/health\/coronavirus\/vaccine\/washington-dc-covid-19-vaccine-grocery-store-workers-social-workers\/65-e2e57fa1-a61a-45a1-9dd0-42f3288e38cf\"><span style=\"font-weight: 400;\">more expansive list of eligible conditions<\/span><\/a><span style=\"font-weight: 400;\"> and a self-declaration policy so people do not have to prove they are eligible to receive the vaccine. Those, at least on paper, are the appropriate steps.\u00a0<\/span><\/p>\n<h4><b>How do you think this update will change your likelihood of getting vaccinated? What are some things you\u2019re doing to access &amp; obtain one?<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">I have been emailing with my pulmonologist. I happened to have a telehealth appointment with him the same day as <\/span><a href=\"https:\/\/covid19.ca.gov\/vaccines\/#California's-vaccination-plan\"><span style=\"font-weight: 400;\">the original tiers came out<\/span><\/a><span style=\"font-weight: 400;\">, and I asked what we needed to do. What do we have to do? He felt confident that every frequent patient of his would be able to get <\/span><a href=\"https:\/\/twitter.com\/SFdirewolf\/status\/1358734807702720518\"><span style=\"font-weight: 400;\">vaccinated in 1C<\/span><\/a><span style=\"font-weight: 400;\">, because we all have pulmonary issues! We\u2019re emailing again now, but he has no idea when it\u2019ll be available, and I have to switch to talking to my primary care about it, even though she isn\u2019t who treats my lungs. It\u2019s so complicated, and it is a constant reminder that it never had to be like this.<\/span><\/p>\n<h4><b>You have a background in public health and I can\u2019t help but think how the state officials from Department of Public Health really don\u2019t *get* disability. Is that unfair? What are things the field of public health needs to understand more about the lived experience of disability &amp; chronic illness?\u00a0<\/b><\/h4>\n<p><span style=\"font-weight: 400;\">Honestly, I think that\u2019s extremely fair. One of the first concepts we learn about in public health graduate school is about <\/span><a href=\"https:\/\/www.smh.com.au\/national\/qaly-quality-of-life-pandemic-argument-is-intellectual-malpractice-20200924-p55yqo.html\"><span style=\"font-weight: 400;\">Quality Adjusted Life Years<\/span><\/a><span style=\"font-weight: 400;\">, and about how we have to work so hard to prevent chronic illness. Those are the only contexts I remember disability coming up at all in my two years of graduate training.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I specialized in Health Education and Health Communication and we never once talked about accessibility for public health campaigns. We talked some about health literacy, about trying to utilize plain language and not design campaigns at extremely high reading levels, but beyond that, disabled people of so many kinds are left out of public health preparedness, public health planning, public health policy, and public health education campaigns.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I (and so many others!) have said since the beginning that COVID-19 never had to be like this. That all of this, all of it, was preventable. But when public health is not adequately invested in AND when public health leaves out the people most at risk and who have the most knowledge, we end up here.<\/span><\/p>\n<h3><b>ABOUT<\/b><\/h3>\n<figure id=\"attachment_474066\" aria-describedby=\"caption-attachment-474066\" style=\"width: 500px\" class=\"wp-caption aligncenter\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"474066\" data-permalink=\"https:\/\/disabilityvisibilityproject.com\/2021\/02\/21\/qa-with-troy-cross\/tory_heyyallmeansall\/\" data-orig-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?fit=1440%2C1440&amp;ssl=1\" data-orig-size=\"1440,1440\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"Tory_heyyallmeansall\" data-image-description=\"\" data-image-caption=\"&lt;p&gt;A standing picture of Tory Cross, a white woman with red hair and black glasses, smiling and wearing green shorts a blue shirt that says \u201cHey Ya\u2019ll Means All\u201d with hey y\u2019all means in white font and All in stripes of blue, pink and white. There is a sidewalk and greenery behind her.&lt;\/p&gt;\n\" data-large-file=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?fit=1024%2C1024&amp;ssl=1\" class=\"wp-image-474066\" src=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?resize=500%2C500&#038;ssl=1\" alt=\"A standing picture of Tory Cross, a white woman with red hair and black glasses, smiling and wearing green shorts a blue shirt that says \u201cHey Ya\u2019ll Means All\u201d with hey y\u2019all means in white font and All in stripes of blue, pink and white. There is a sidewalk and greenery behind her.\" width=\"500\" height=\"500\" srcset=\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?resize=300%2C300&amp;ssl=1 300w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?resize=1024%2C1024&amp;ssl=1 1024w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?resize=150%2C150&amp;ssl=1 150w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?resize=768%2C768&amp;ssl=1 768w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?resize=250%2C250&amp;ssl=1 250w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?resize=50%2C50&amp;ssl=1 50w, https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/Tory_heyyallmeansall.jpg?w=1440&amp;ssl=1 1440w\" sizes=\"auto, (max-width: 500px) 100vw, 500px\" \/><figcaption id=\"caption-attachment-474066\" class=\"wp-caption-text\">A standing picture of Tory Cross, a white woman with red hair and black glasses, smiling and wearing green shorts a blue shirt that says \u201cHey Ya\u2019ll Means All\u201d with hey y\u2019all means in white font and All in stripes of blue, pink and white. There is a sidewalk and greenery behind her.<\/figcaption><\/figure>\n<p><span style=\"font-weight: 400;\"><strong>Tory Cross<\/strong> (she\/her\/hers) is a disabled queer survivor and an organizer. She graduated with a Masters of Science in Public Health in 2017 from Johns Hopkins School of Public Health, where she focused on public health policy involving poverty and environmental health. Her past work includes policy research and analysis, advocacy, and staffing campaigns. She most recently worked for Jon Ossoff\u2019s successful campaign for the US Senate as a Distributed Organizing Manager. At any given time, she can be found within two feet of a book, a cat, a cup of coffee, or all three.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">You can follow her on twitter at <\/span><a href=\"https:\/\/twitter.com\/queer_spice\"><span style=\"font-weight: 400;\">@queer_spice<\/span><\/a><span style=\"font-weight: 400;\"> or reach her by email at <\/span><a href=\"mailto:torycross11@gmail.com\"><span style=\"font-weight: 400;\">torycross11@gmail.com<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><b>Support Disability Media and Culture<\/b><\/p>\n<p style=\"text-align: center;\"><a href=\"https:\/\/disabilityvisibilityproject.com\/donate\/\"><b>DONATE<\/b><\/a><b>\u00a0to the Disability Visibility Project\u00ae<\/b><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Social media can be trash but it\u2019s not *all* trash. I learn so much from people I follow on Twitter such as Tory Cross. Here is an interview with Tory &hellip; <a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/02\/21\/qa-with-troy-cross\/\" class=\"read-more\">Continue Reading <span class=\"screen-reader-text\">Q&#038;A with Tory Cross<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":474070,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[548706274],"tags":[3471,10629788,1337,335421,632345,587152846,444672310,587153023,10372239,587152645,1460,587152847,8197,587152354,1076582,587152751,587152877,587152347,34714,587153010,84540,50738,41572],"class_list":["post-474067","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dvp-blog-posts-and-essays","tag-accessibility","tag-accessible-healthcare","tag-california","tag-chronic-illness","tag-community-organizing","tag-coronavirus","tag-crip-the-vote","tag-digital-organizing","tag-disability-community","tag-disabled-survivors","tag-healthcare","tag-pandemic","tag-political-campaigns","tag-political-engagement","tag-political-participation","tag-progressive-politics","tag-public-health","tag-queer-disabled-people","tag-trauma","tag-vaccine-equity","tag-vaccines","tag-voting","tag-voting-rights","post-has-thumbnail"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/02\/TORY-Twitter.png?fit=1600%2C900&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p4H7t1-1Zkf","jetpack_likes_enabled":true,"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/474067","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/comments?post=474067"}],"version-history":[{"count":0,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/474067\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media\/474070"}],"wp:attachment":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media?parent=474067"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/categories?post=474067"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/tags?post=474067"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}