{"id":481061,"date":"2021-10-24T03:46:43","date_gmt":"2021-10-24T10:46:43","guid":{"rendered":"https:\/\/disabilityvisibilityproject.com\/?p=481061"},"modified":"2026-02-12T17:19:11","modified_gmt":"2026-02-13T01:19:11","slug":"marilyn-golden-an-unforgettable-legacy-of-wisdom-dedication-and-results","status":"publish","type":"post","link":"https:\/\/disabilityvisibilityproject.com\/2021\/10\/24\/marilyn-golden-an-unforgettable-legacy-of-wisdom-dedication-and-results\/","title":{"rendered":"Marilyn Golden: An Unforgettable Legacy of Wisdom, Dedication, and Results"},"content":{"rendered":"

Marilyn Golden: An Unforgettable Legacy of Wisdom, Dedication, and Results<\/strong><\/h3>\n

 <\/p>\n

Diane Coleman<\/strong><\/h4>\n

 <\/p>\n

There\u2019s been an incredible, powerfully moving and profoundly deserved outpouring of love and gratitude for <\/span>Marilyn Golden<\/span><\/a> since her passing on September 21<\/span>st<\/span>. <\/span>Attending and sharing thoughts at her memorial service, I was again reminded of her amazing contributions to the <\/span>accessibility of our country<\/span><\/a>, from her pushing through the halls of Congress toward passage of the Americans with Disabilities Act (ADA) to the often thankless work of preparing public comments on proposed ADA regulations. As many of us who fought the battle for accessible public transportation know, Marilyn was the <\/span>unsurpassed national expert<\/span><\/a> on the technical policy issues that would determine whether disabled people would finally be able to get around in our communities like everybody else.<\/span><\/p>\n

Anyone who follows Not Dead Yet also knows that Marilyn has been a mission critical partner in our work <\/span>opposing assisted suicide laws<\/span><\/a>. In the last decade, <\/span>we sought each other out on assisted suicide policy education and advocacy activities to the extent that we were almost daily companions. <\/span>I have more than 10,000 emails from Marilyn reflecting our invaluable and ongoing dialogue. Initially upon her passing, I found it hard to focus enough to say much more than that, but the work she did on NDY\u2019s signature issue should not and could not be ignored.<\/span><\/p>\n

Even the New York Times, which <\/span>supports<\/span><\/a> assisted suicide laws, could not omit this important aspect of her advocacy in its September 28<\/span>th<\/span> tribute, <\/span>Marilyn Golden, Effective Voice for the Disabled, Dies at 67<\/span><\/i><\/a>:<\/span><\/i><\/p>\n

She also actively opposed efforts in several states to legalize assisted suicide. She argued that such practices were fueled by a fear of disability \u2014 \u201cthe public image of disability is as a fate worse than death,\u201d she said \u2014 and prejudice against it, citing \u201ceconomic pressures of the health care system to relieve itself of its most expensive patients.\u201d<\/span><\/p>\n

\u201cWe are not opposing aggressive palliative care \u2014 that\u2019s pain and comfort care \u2014 nor the right to refuse or withdraw medical treatment,\u201d\u00a0<\/span>she added<\/span><\/a>. \u201cNor are we opposed to the proper, narrow application of a treatment called palliative sedation, when death is truly imminent. We are only opposing more aggressive ways to hasten death,\u201d like legalizing lethal injections or prescriptions of barbiturates.<\/span><\/p>\n

Nor could the <\/span>Washington Post<\/span><\/a> on September 29<\/span>th<\/span>:<\/span><\/p>\n

\u201cBecause the public image of disability is as a fate worse than death, and because a disability can indeed bring about misery because of the lack of good support services .\u2009.\u2009. our societies have unfortunately become fertile ground for the forwarding of these laws,\u201d she said in a\u00a0<\/span>2008 speech<\/span><\/a>. \u201cMany have argued that these laws play directly into the economic pressures of the health-care system to relieve itself of its most expensive patients, and this can hardly be more true anywhere than in the United States.\u201d<\/span><\/p>\n

Over the years, Marilyn has <\/span>trained<\/span><\/a> countless disability advocates on the specific failures of purported safeguard in assisted suicide laws. She\u2019s spoken before national, state and local audiences in person and via webinars. At least as importantly, she\u2019s spent untold hours personally mentoring people with disabilities who have wanted to testify and advocate against a public policy of assisted suicide, often individuals with personal experiences of medical discrimination and neglect. Marilyn took the time to explain the failures of safeguards in these bills and to organize <\/span>assisted suicide resources<\/span><\/a> on the DREDF website to ensure that advocates had the tools to make their voices heard.\u00a0\u00a0\u00a0<\/span><\/p>\n

She has also personally <\/span>testified<\/span><\/a> against assisted suicide bills in numerous state legislatures as well as organized disability opposition in key states. Her <\/span>writings<\/span><\/a> on the subject include <\/span>scholarly articles<\/span><\/a> as well as numerous <\/span>op-eds<\/span><\/a>, and she served a central role in the National Council on Disability\u2019s groundbreaking report on <\/span>The Danger of Assisted Suicide Laws<\/span><\/a>.<\/span><\/p>\n

\"Marilyn
Marilyn Golden [left] in her manual wheelchair with brown curly hair, wire rimmed glasses, purple shirt, conference name tag, a briefcase in her lap, seated next to Diane Coleman [right] in her motorized wheelchair with gray and blond bobbed hair, wire rimmed glasses, blue patterned dress with white sweater, tapestry shoulder bag and slim briefcase to her side. Both are smiling and leaning toward each other. The year is 2014.<\/figcaption><\/figure>Tributes to Marilyn are still appearing, including <\/span>DREDF\u2019s Memorial page<\/span><\/a>, the <\/span>Patients Rights Action Fund<\/span><\/a>, <\/span>Jim Weisman of United Spinal<\/span><\/a> and <\/span>NDY\u2019s initial announcement<\/span><\/a>. I shared these thoughts at her Memorial Service:\u00a0<\/span><\/p>\n

It\u2019s an honor to be asked to say a few words about Marilyn. We first met when I was a newbie to the disability rights movement, living in Los Angeles in the 1980s. It wasn\u2019t long before we were both asked to serve on the California Attorney General\u2019s Commission on Disability and, as she did for so many, Marilyn took me under her wing, mentoring and role modeling how to do the hard work, the precision efforts required to squeeze meaningful progress out of something too often designed to hold progress back. Her knowledge, skill and tenacious focus were always a force to be reckoned with. She got things done. I was arrested in the 1987 transportation access protest she mentioned in the video, I suspect she was too, but I hadn\u2019t realized what a turning point those events were for her.<\/span><\/p>\n

Beginning in the late 1990s, Marilyn also played a critical leadership role in disability advocacy against assisted suicide laws, starting in California. In this past decade, I had the privilege of working with Marilyn on an almost daily basis. Given the struggle for healthcare access and equity, neither of us viewed assisted suicide as a progressive cause. As the public policy fight expanded to many states, she was my closest companion in organizing disability advocates across the country, drawing from relationships built over her long career. She trained countless advocates on the specific failures of purported safeguards in assisted suicide laws, speaking before national, state and local audiences. As always, she mentored, she wrote, both scholarly articles as well as numerous op-eds for mainstream media. I\u2019ll be sharing some of those on the Not Dead Yet website. She was also masterful when giving interviews. At one point, she composed these words to express her reasons for devoting so much of herself to this issue: \u201cIf assisted suicide is legal, some people\u2019s lives will be ended without their consent, through mistakes and abuse. No safeguards have ever been enacted or even proposed, that can prevent this outcome, which can never be undone.\u201d Her compelling words now appear on many Not Dead Yet information and training materials. Three years ago, the National Council on Disability contracted with her to do research for its groundbreaking report on <\/span>The Danger of Assisted Suicide Laws<\/span><\/a> which is distributed to policy makers as the definitive exposition on this subject.\u00a0<\/span><\/p>\n

We shared many commonalities in our approach to work, felt so much in synch on that level, that I find it hard to separate the personal and professional.<\/span> I\u2019ve been hearing today about quite a few non-work things Marilyn and I had in common but never discussed, being so focused on work. So thank you for that. I truly hope she knew how incredible her contributions have been and knew that we will keep her incomparable gifts, her legacy, alive in our hearts and minds.<\/span><\/p>\n

Those things we almost never mentioned were science fiction, music from our younger days and favorite TV shows. I really wish we had. I can imagine the great fun we could have enjoyed over those things and I\u2019m sorry we didn\u2019t. Still, I\u2019m so glad she made room for all those things and so much more in her beautiful life. Like so many in the disability community and beyond, I\u2019m honored to have shared such invaluable time with her. She\u2019s left an unforgettable legacy of wisdom and dedication on which we can all keep building.<\/span><\/p>\n

 <\/p>\n

ABOUT<\/b><\/h4>\n
\"Headshot
Headshot image of Diane Coleman wearing red print top and red sweater, smiling with gray bobbed hair, wire rimmed glasses and a nasal breathing mask with a white tube hanging downward.<\/figcaption><\/figure>\n

 <\/p>\n

Diane Coleman<\/b> is the President and CEO of <\/span>Not Dead Yet<\/span><\/a>, a national disability rights group which she founded in 1996 to give voice to disability rights opposition to legalization of assisted suicide and euthanasia. Prior to that, she served for three years as Director of Advocacy at the Center for Disability Rights in Rochester, New York and twelve years as Executive Director of Progress Center for Independent Living in Forest Park, Illinois. Ms. Coleman has presented invited testimony four times before Subcommittees of the U.S. House of Representatives and Senate. She is a well-known writer and speaker on assisted suicide and euthanasia, and has appeared on national television news broadcasts for Nightline, CNN, ABC, CBS, MSNBC and others, as well as National Public Radio. She co-authored Amicus Briefs filed in the U.S. Supreme Court and various state courts on behalf of Not Dead Yet and other national disability organizations on the topics of assisted suicide and surrogate health care decision making. She has a law degree and Masters in Business Administration from UCLA. From 2003 to 2008, she was a member of the adjunct faculty at the University of Illinois at Chicago and co- taught two graduate courses in disability and medical ethics. Ms. Coleman is a person with neuromuscular disabilities who has used a motorized wheelchair since the age of eleven.<\/span><\/p>\n

Twitter: <\/span>@ndycoleman<\/span><\/a> and <\/span>@NotDeadYetUSA<\/span><\/a>\u00a0<\/span><\/p>\n

 <\/p>\n

Support Disability Media and Culture<\/b><\/p>\n

DONATE<\/b><\/a>\u00a0to the Disability Visibility Project\u00ae<\/b><\/p>\n","protected":false},"excerpt":{"rendered":"

Marilyn Golden: An Unforgettable Legacy of Wisdom, Dedication, and Results   Diane Coleman   There\u2019s been an incredible, powerfully moving and profoundly deserved outpouring of love and gratitude for Marilyn … Continue Reading Marilyn Golden: An Unforgettable Legacy of Wisdom, Dedication, and Results<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":481050,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[6701202,1],"tags":[238541,10941,2185238,168607,69732,587152427,19343,2401],"class_list":["post-481061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-guest-blog-posts","category-uncategorized","tag-assisted-suicide","tag-civil-rights","tag-disability-history","tag-disability-rights","tag-mass-transit","tag-public-transit","tag-sf-bay-area","tag-transportation","post-has-thumbnail"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2021\/10\/Marilyn-Diane.jpg?fit=3264%2C2448&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p4H7t1-2193","jetpack_likes_enabled":true,"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/481061","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/comments?post=481061"}],"version-history":[{"count":0,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/481061\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media\/481050"}],"wp:attachment":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media?parent=481061"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/categories?post=481061"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/tags?post=481061"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}