{"id":482367,"date":"2022-01-09T06:53:26","date_gmt":"2022-01-09T14:53:26","guid":{"rendered":"https:\/\/disabilityvisibilityproject.com\/?p=482367"},"modified":"2026-02-12T17:19:11","modified_gmt":"2026-02-13T01:19:11","slug":"high-risk-pandemic-stories-a-syllabus","status":"publish","type":"post","link":"https:\/\/disabilityvisibilityproject.com\/2022\/01\/09\/high-risk-pandemic-stories-a-syllabus\/","title":{"rendered":"High-Risk Pandemic Stories: A Syllabus"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Since March 2020 I have been collecting strands of disabled wisdom about the pandemic and trying to gather, weave, and share them. Disabled, fat, older, poor, immunocompromised, and chronically ill folks have been <\/span><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/08\/14\/message-from-the-future-disabled-oracle-society\/\"><span style=\"font-weight: 400;\">oracles<\/span><\/a><span style=\"font-weight: 400;\"> well before this global public health disaster and continue to this day as institutions and leaders treat marginalized communities as disposable.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">With the Disability Visibility Project I feel a keen urgency to publish as many pieces about the pandemic because our perspectives and warnings are not heeded. And here we are today with eugenics and systemic ableism displayed nakedly upon the altar of capitalism and white supremacy. I resent the implication that we have to prove our value and reveal our traumas in order to be seen as human and worthy of \u2018care.\u2019<\/span><\/p>\n<p><span style=\"font-weight: 400;\">We are all doing what we can with what we have. I hope some of the links of high-risk pandemic stories below will be useful.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">We are not alone.\u00a0<\/span><\/p>\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\">\n<p lang=\"en\" dir=\"ltr\">I am also intensely uncomfortable at the need to defend our humanity and worth. Too much of my life has been centered on nondisabled expectations. <\/p>\n<p>And yet, this is where we are. <a href=\"https:\/\/twitter.com\/hashtag\/MyDisabledLifeIsWorthy?src=hash&amp;ref_src=twsrc%5Etfw\">#MyDisabledLifeIsWorthy<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/HighRiskCOVID19?src=hash&amp;ref_src=twsrc%5Etfw\">#HighRiskCOVID19<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/NEISvoid?src=hash&amp;ref_src=twsrc%5Etfw\">#NEISvoid<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/DisabilityTwitter?src=hash&amp;ref_src=twsrc%5Etfw\">#DisabilityTwitter<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/CripTheVote?src=hash&amp;ref_src=twsrc%5Etfw\">#CripTheVote<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/LongCOVID?src=hash&amp;ref_src=twsrc%5Etfw\">#LongCOVID<\/a> <a href=\"https:\/\/t.co\/mhYZ0f8RXW\">https:\/\/t.co\/mhYZ0f8RXW<\/a><\/p>\n<p>&mdash; Alice Wong \u738b\u7f8e\u83ef (@SFdirewolf) <a href=\"https:\/\/twitter.com\/SFdirewolf\/status\/1480044050417733632?ref_src=twsrc%5Etfw\">January 9, 2022<\/a><\/p><\/blockquote>\n<p><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script><\/p>\n<h3><b>Recent work<\/b><\/h3>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/wakelet.com\/wake\/1633ef52-2ade-43a9-b118-50d19f821cb7\"><span style=\"font-weight: 400;\">Collection of stories, resources, and Tweets<\/span><\/a><span style=\"font-weight: 400;\"> by disabled people about the pandemic since 2020.<\/span><\/p>\n<p><a href=\"https:\/\/wakelet.com\/wake\/5l0jl6dtU_LYG0rNRY6LW\"><span style=\"font-weight: 400;\">Collection of stories, resources, and Tweets by high-risk people in California<\/span><\/a><span style=\"font-weight: 400;\"> about vaccine equity in early 2021.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">From <\/span><a href=\"https:\/\/www.bitchmedia.org\/article\/access-issue-intro\"><i><span style=\"font-weight: 400;\">The Access Issue<\/span><\/i><\/a><span style=\"font-weight: 400;\"> co-edited with Evette Dionne for Bitch Media<\/span><\/p>\n<p style=\"padding-left: 40px;\"><a href=\"https:\/\/www.bitchmedia.org\/article\/vaccine-equity-disability-race-access-issue\"><span style=\"font-weight: 400;\">Shot Chaser: What Does It Take to Achieve Vaccine Equity?<\/span><\/a><span style=\"font-weight: 400;\"> by Diana Cejas<\/span><\/p>\n<p style=\"padding-left: 40px;\"><a href=\"https:\/\/www.bitchmedia.org\/article\/post-pandemic-work-access-issue\"><span style=\"font-weight: 400;\">The Complex Future of Post-Pandemic Work<\/span><\/a><span style=\"font-weight: 400;\"> by Julia Metraux<\/span><\/p>\n<h3><b>2020-21 DVP interviews<\/b><\/h3>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/12\/16\/qa-with-andres-jay-molina-and-alexis-neophytides\/\"><span style=\"font-weight: 400;\">Q&amp;A with Andres \u201cJay\u201d Molina and Alexis Neophytides<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/05\/12\/food-insecurity-covid-19-interview-with-hector-m-ramirez\/\"><span style=\"font-weight: 400;\">Food Insecurity &amp; COVID-19: Interview with H\u00e9ctor M. Ram\u00edrez<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/02\/21\/qa-with-troy-cross\/\"><span style=\"font-weight: 400;\">Q&amp;A with Tory Cross<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/02\/12\/qa-with-sabrina-epstein\/\"><span style=\"font-weight: 400;\">Q&amp;A with Sabrina Epstein<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/03\/06\/qa-with-ingrid-tischer\/\"><span style=\"font-weight: 400;\">Q&amp;A with Ingrid Tischer<\/span><\/a><\/p>\n<h3><b>2020-21 Guest essays for DVP<\/b><\/h3>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/03\/30\/fatphobia-ableism-and-the-covid-19-pandemic\/\"><span style=\"font-weight: 400;\">Fatphobia, Ableism, and the COVID-19 Pandemic by Finn Gardiner<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/03\/26\/disabled-communities-in-the-covid-19-pandemic\/\"><span style=\"font-weight: 400;\">Disabled Communities in the COVID-19 Pandemic by Amy Gaeta<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/05\/18\/reasons-to-be-angry-during-a-pandemic\/\"><span style=\"font-weight: 400;\">Reasons to be Angry During a Pandemic by Hannah Soyer\u00a0<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/05\/14\/a-paradoxical-history-of-black-disease\/\"><span style=\"font-weight: 400;\">A Paradoxical History of Black Disease by Cyr\u00e9e Jarelle Johnson<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/04\/27\/my-life-has-quality\/\"><span style=\"font-weight: 400;\">My Life Has Quality by Elsa R. Sjunneson<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/04\/15\/yom-hashoah-in-the-times-of-covid-19\/\"><span style=\"font-weight: 400;\">Yom HaShoah in the times of COVID-19 by Zipporah Arielle<\/span><\/a><span style=\"font-weight: 400;\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/08\/24\/cripping-the-resistance-no-revolution-without-us\/\"><span style=\"font-weight: 400;\">Cripping The Resistance: No Revolution Without Us by Leah Lakshmi Piepzna-Samarasinha<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/03\/22\/what-the-disabled-community-offered-the-world\/\"><span style=\"font-weight: 400;\">What the Disabled Community Offered the World by Kaalyn M.<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/03\/08\/and-now-here-we-are\/\"><span style=\"font-weight: 400;\">And Now Here We Are by <\/span><span style=\"font-weight: 400;\">Sam Sch\u00e4fer<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/03\/10\/my-year-of-nothing-but-everything\/\"><span style=\"font-weight: 400;\">My Year of Nothing but Everything by Emily Ackerman<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/07\/25\/moving-from-survival\/\"><span style=\"font-weight: 400;\">Moving From Survival by Sandy Ho<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/09\/07\/high-risk-vaccine-hesitancy\/\"><span style=\"font-weight: 400;\">High-Risk Vaccine Hesitancy by <\/span><span style=\"font-weight: 400;\">Brianne Benness<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/10\/13\/accessibility-and-the-lack-thereof-in-the-film-industry\/\"><span style=\"font-weight: 400;\">Accessibility and the Lack Thereof in the Film Industry by Carolyn Hinds<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/10\/03\/how-disabled-mutual-aid-is-different-than-abled-mutual-aid\/\"><span style=\"font-weight: 400;\">How Disabled Mutual Aid Is Different Than Abled Mutual Aid by Leah Lakshmi Piepzna-Samarasinha<\/span><\/a><\/p>\n<h3><b>2020-21 Disability Visibility podcast episodes<\/b><\/h3>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/wp.me\/p4H7t1-1XCh\"><span style=\"font-weight: 400;\">Ep 74: Coronavirus and Caregiving with Heather Watkins and Dawn Gibson<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/04\/12\/ep-74a-coronavirus-and-spirituality\/\"><span style=\"font-weight: 400;\">Ep 74a: Coronavirus and Spirituality with Elliot Kukla<\/span><\/a><\/p>\n<p><a href=\"https:\/\/wp.me\/p4H7t1-1XNM\"><span style=\"font-weight: 400;\">Ep 75: Coronavirus and Disaster Planning with Germ\u00e1n Luis Parodi and Valerie Novack<\/span><\/a><\/p>\n<p><a href=\"https:\/\/wp.me\/p4H7t1-1YUz\"><span style=\"font-weight: 400;\">Ep 81: Bioethics with Joe Stramondo<\/span><\/a><\/p>\n<p><a href=\"https:\/\/wp.me\/p4H7t1-1Z1U\"><span style=\"font-weight: 400;\">Ep 85: Fat Liberation with Max Airborne and Caleb Luna\u00a0<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/12\/26\/ep-93-indigenous-disabled-creators\/\"><span style=\"font-weight: 400;\">Ep 93: Indigenous Disabled Creators with Johnnie Jae<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/01\/10\/ep-94-healthcare-rationing\/\"><span style=\"font-weight: 400;\">Ep 94: Healthcare Rationing with Britney Wilson<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2021\/01\/23\/ep-95-black-doctors-with-disabilities\/\"><span style=\"font-weight: 400;\">Ep 95: Black Doctors with Disabilities with Dr. Justin Bullock<\/span><\/a><\/p>\n<h3><b>Articles by me and other interviews\u00a0<\/b><\/h3>\n<p>&nbsp;<\/p>\n<p><a href=\"http:\/\/www.anamariecox.com\/with-friends-like-these\/2020\/4\/9\/its-my-body-and-ill-live-if-i-want-to\"><span style=\"font-weight: 400;\">&#8220;It&#8217;s My Body and I&#8217;ll Live if I Want To&#8221;<\/span><\/a><\/p>\n<p><a href=\"https:\/\/www.kqed.org\/news\/11819539\/it-just-burns-me-up-disability-activist-alice-wong-reminds-california-this-pandemic-is-far-from-over\"><span style=\"font-weight: 400;\">&#8216;It Just Burns Me Up&#8217;: Disability Activist Alice Wong Reminds California This Pandemic Is Far From Over<\/span><\/a><\/p>\n<p><a href=\"https:\/\/www.vox.com\/first-person\/2020\/4\/4\/21204261\/coronavirus-covid-19-disabled-people-disabilities-triage\"><span style=\"font-weight: 400;\">\u201cI\u2019m disabled and need a ventilator to live. Am I expendable during this pandemic?\u201d<\/span><\/a><span style=\"font-weight: 400;\">\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/03\/18\/coronavirus\/\"><span style=\"font-weight: 400;\">Disabled Oracles and the Coronavirus<\/span><\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/06\/07\/freedom-for-some-is-not-freedom-for-all\/\"><span style=\"font-weight: 400;\">Freedom for Some Is Not Freedom for All<\/span><\/a><\/p>\n<p><a href=\"https:\/\/openspace.sfmoma.org\/2020\/05\/there-is-no-one-way\/\">There Is No One Way<\/a><\/p>\n<p><a href=\"https:\/\/disabilityvisibilityproject.com\/2020\/08\/14\/message-from-the-future-disabled-oracle-society\/\"><span style=\"font-weight: 400;\">Message from the Future: Disabled Oracle Society<\/span><\/a><\/p>\n<p><a href=\"https:\/\/pen.org\/the-political-is-personal\/\">The Political Is Personal<\/a><\/p>\n<p><a href=\"https:\/\/www.teenvogue.com\/story\/voters-with-disabilities-barriers-covid\"><span style=\"font-weight: 400;\">Voters With Disabilities Face Barriers in 2020 From COVID-19<\/span><\/a><\/p>\n<p><a href=\"https:\/\/docs.google.com\/document\/d\/1GC6io3ScpOEO9wcmNStCuTS0gCU1qCiM8c8TL6SidQ0\/edit?usp=sharing\"><span style=\"font-weight: 400;\">Night of Ideas keynote on access post-pandemic<\/span><\/a><\/p>\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\">\n<p lang=\"en\" dir=\"ltr\">Disabled Advocates Demand Better Vaccine Access as They Face Greater Risks of Dying from COVID-19 <a href=\"https:\/\/t.co\/o3AO1boJJ1\">https:\/\/t.co\/o3AO1boJJ1<\/a> <a href=\"https:\/\/t.co\/bbxCoU5n0A\">pic.twitter.com\/bbxCoU5n0A<\/a><\/p>\n<p>&mdash; Democracy Now! (@democracynow) <a href=\"https:\/\/twitter.com\/democracynow\/status\/1359161397020684290?ref_src=twsrc%5Etfw\">February 9, 2021<\/a><\/p><\/blockquote>\n<p><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script><\/p>\n<div class=\"jetpack-video-wrapper\"><span class=\"embed-youtube\" style=\"text-align:center; display: block;\"><iframe loading=\"lazy\" class=\"youtube-player\" width=\"1360\" height=\"765\" src=\"https:\/\/www.youtube.com\/embed\/w1n2YYpeIyQ?version=3&#038;rel=1&#038;showsearch=0&#038;showinfo=1&#038;iv_load_policy=1&#038;fs=1&#038;hl=en-US&#038;autohide=2&#038;wmode=transparent\" allowfullscreen=\"true\" style=\"border:0;\" sandbox=\"allow-scripts allow-same-origin allow-popups allow-presentation allow-popups-to-escape-sandbox\"><\/iframe><\/span><\/div>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><b>Support Disability Media and Culture<\/b><\/p>\n<p style=\"text-align: center;\"><a href=\"https:\/\/disabilityvisibilityproject.com\/donate\/\"><b>DONATE<\/b><\/a><b>\u00a0to the Disability Visibility Project\u00ae<\/b><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Since March 2020 I have been collecting strands of disabled wisdom about the pandemic and trying to gather, weave, and share them. Disabled, fat, older, poor, immunocompromised, and chronically ill &hellip; <a href=\"https:\/\/disabilityvisibilityproject.com\/2022\/01\/09\/high-risk-pandemic-stories-a-syllabus\/\" class=\"read-more\">Continue Reading <span class=\"screen-reader-text\">High-Risk Pandemic Stories: A Syllabus<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":482373,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[548706274],"tags":[587152853,10372239,2005041,25064673,168607,587152944,587153072,587152840,587152847,1400],"class_list":["post-482367","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dvp-blog-posts-and-essays","tag-covid19","tag-disability-community","tag-disability-culture","tag-disability-justice","tag-disability-rights","tag-disabled-oracles","tag-long-covid","tag-oracle","tag-pandemic","tag-storytelling","post-has-thumbnail"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2022\/01\/High-risk-pandemic-stories-1.png?fit=1600%2C900&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p4H7t1-21u7","jetpack_likes_enabled":true,"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/482367","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/comments?post=482367"}],"version-history":[{"count":0,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/posts\/482367\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media\/482373"}],"wp:attachment":[{"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/media?parent=482367"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/categories?post=482367"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/disabilityvisibilityproject.com\/wp-json\/wp\/v2\/tags?post=482367"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}