![\"Photo](\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2022\/08\/Alice-Wong-03-9757-SQ.jpg?resize=300%2C300&ssl=1\")
<\/p>\n
Personal Highlights<\/strong><\/h2>\n <\/p>\n![\"\"](\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2022\/01\/Year-of-the-Tiger-book-cover_final.jpg?resize=664%2C1024&ssl=1\")
Book cover for Year of the Tiger: An Activist\u2019s Life with a marigold yellow background. On the right side is an illustration of a crouching tiger in red in the style of Chinese paper cuttings with delicate cutouts in various shapes giving form and definition to the tiger. The tiger has a fierce expression, eyes and jaws wide open, teeth bared. The tiger has large paws with four claws extended. On the left in black large text YEAR OF THE TIGER at the top and ALICE WONG below. In the center in smaller red text AN ACTIVIST\u2019S LIFE and in the lower right corner EDITOR OF DISABILITY VISIBILITY. Small, delicate red flowers are sprinkled throughout. Book cover by Madeline Partner.<\/figcaption><\/figure>\nYear of the Tiger<\/strong><\/h3>\nI wrote a memoir: Year of the Tiger: An Activist’s Life<\/a>! Check out my page<\/a> for more such as a free discussion guide and plain language summary, videos, reviews, and more!<\/p>\nI also collaborated with Umeko Motoyoshi of Umeshiso.com<\/a> offering my book and book swag with some gorgeous gay spoons and chopsticks<\/a>!<\/p>\n![\"Photo](\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2022\/11\/umeshiso-collab.png?resize=1024%2C576&ssl=1\")
Photo with a purple-pink reflective background featuring a gold dipper spoon from @umeshiso_ (on IG). On the left are gold ginkgo leaf decorations, a small rainbow, and below are two clear crystals. Photo credit: @ziru.mo (on IG). Right: Photo with a purple-pink background with a copy of Year of the Tiger paperback in the center. Above and below the book are a pair of rainbow chopsticks from @umeshiso_ (on IG). On the right of the book is a tiger bookmark and is one round tiger sticker and one round tiger button. Floral decorations and a small rainbow decor are placed around the edges. Photo credit: @ziru.mo (on IG)<\/figcaption><\/figure>\nMy ICU Summer<\/strong><\/h3>\nWelp, beyond my control and carefully laid plans I became very sick and ended up in the ICU for 4 weeks this past summer<\/a>. It upended my life and I am still slowly recovering and healing. I truly hope 2023 will be better for me.<\/p>\n![\"I](\"https:\/\/i0.wp.com\/disabilityvisibilityproject.com\/wp-content\/uploads\/2022\/08\/IMG_2546.jpeg?resize=768%2C1024&ssl=1\")
I didn\u2019t leave my room for weeks and Vivian the nurse arranged to have a RT carry my vent on a pole, following me as I took a loop around the ICU floor. It was such a rare treat and I spent a few minutes looking at the view by the nurse\u2019s station of San Francisco on a bright day with blue skies and clouds. I am probably trying to rest while plagued by doubts and uncertainty about the future.<\/figcaption><\/figure>\nPublications By Me<\/strong><\/h3>\nAlmost dying lit a fire under me. I shared my experiences in these three pieces. In many ways these pieces are like an epilogue for Year of the Tiger. More to come in 2023!<\/p>\n
I Still Have a Voice, KQED\u00a0<\/a><\/p>\nConstant Cravings: Life With a Feeding Tube, Eater<\/a><\/p>\n‘My Life Is in My Caregivers’ Hands’: Disability Advocate Alice Wong’s Vision for a New Approach to Health Care, KQED<\/a><\/p>\nDVP Highlights<\/strong><\/h2>\n <\/p>\n
Through the <\/span>Disability Visibility substack<\/span><\/a> (a free newsletter), I gave away books by 22 disabled, chronically ill, Mad, d\/Deaf writers.\u00a0\u00a0<\/span><\/p>\nProjects and Collaborations<\/b><\/h4>\n
Community As Home<\/span><\/a> portraits with Ashanti Fortson<\/span><\/p>\nSociety of Disabled Oracles<\/span><\/a> with Aimi Hamraie and Jen White-Johnson<\/span><\/p>\nPOD Access Initiative<\/span><\/a>\u00a0 – a website for disabled podcasters with Cheryl Green and Thomas Reid<\/span><\/p>\nPublished and wrote 6 blog posts<\/b><\/h4>\n
DVP: 2021 Year in Review<\/span><\/a><\/p>\nUpdate on Philips CPAP, BiPAP, and Ventilator Recall<\/span><\/a><\/p>\nHigh-Risk Pandemic Stories: A Syllabus<\/span><\/a><\/p>\nMay 2022 Philips Recall Summary<\/span><\/a><\/p>\nCrip Siblings: Interview with Chun-san (Sandie) Yi<\/span><\/a><\/p>\nMy ICU Summer: A Photo Essay<\/span><\/a><\/p>\nPublished 19 guest essays by disabled writers\u00a0<\/b><\/h4>\n
Disabled Deaths Are Not Your \u201cEncouraging News\u201d: Resisting The Cruel Eugenics of Comorbidity Rhetoric<\/span><\/a> by Ada Hubrig\u00a0<\/span><\/p>\nReading Storms, Embracing Life: A Remembrance of Neil Marcus<\/span><\/a> by Steven E. Brown<\/span><\/p>\nCare During COVID: Photo Essay on Interdependence<\/span><\/a> by Marley Molkentin and Kennedy Healy\u00a0<\/span><\/p>\nAbolish Long-Term Care: Nationalize Home Care in Canada<\/span><\/a> by Megan Linton and Sarah Jama<\/span><\/p>\nPerhaps They Won\u2019t Have Died in Vain: The GRIM Project<\/span><\/a> by Aislinn Thomas<\/span><\/p>\nHow radical acceptance of my disabled body made a mess (and clarity) of my gender acceptance<\/span><\/a> by A. Andrews\u00a0<\/span><\/p>\nMy Villain Origin Story: Break-up with My Disability Constituency Organization<\/span><\/a> by Rebecca Cokley<\/span><\/p>\nDisabled People Are Tired: Public Health and Ableism<\/span><\/a> by Christine Mitchell<\/span><\/p>\nMaking a Case for Self-Description: It\u2019s Not About Eye Candy<\/span><\/a> by Thomas Reid<\/span><\/p>\nTwo years into the pandemic, I\u2019m not sure if I can trust nondisabled people anymore: It feels like I am seeing a guy stick his head into an alligator\u2019s mouth over and over<\/span><\/a> by Anna Hamilton<\/span><\/p>\nWe Don\u2019t Talk About Generational Trauma, No, No<\/span><\/a> by Jocelyn Mondragon-Rosas<\/span><\/p>\nWhy I Won\u2019t Be Organizing Any In-Person Fundraising Events For the Foreseeable Future<\/span><\/a> by Ingrid Tischer<\/span><\/p>\nWhat Will Never Be Again<\/span><\/a> by Jane Shi<\/span><\/p>\nMy MS and Me<\/span><\/a> by Carolyn Hinds\u00a0<\/span><\/p>\nRest in Peace, Bitch Magazine<\/span><\/a> by s.e. smith\u00a0<\/span><\/p>\nTaking the Edge Off: Navigating an Ableist Pandemic Through Mixology<\/span><\/a> by Mary Frances Layden\u00a0<\/span><\/p>\nOn Madness<\/span><\/a> by Noah Strauss<\/span><\/p>\nRelease the Red Panda<\/span><\/a> by Sandy Ho<\/span><\/p>\n
Year of the Tiger<\/strong><\/h3>\nI wrote a memoir: Year of the Tiger: An Activist’s Life<\/a>! Check out my page<\/a> for more such as a free discussion guide and plain language summary, videos, reviews, and more!<\/p>\nI also collaborated with Umeko Motoyoshi of Umeshiso.com<\/a> offering my book and book swag with some gorgeous gay spoons and chopsticks<\/a>!<\/p>\nPhoto with a purple-pink reflective background featuring a gold dipper spoon from @umeshiso_ (on IG). On the left are gold ginkgo leaf decorations, a small rainbow, and below are two clear crystals. Photo credit: @ziru.mo (on IG). Right: Photo with a purple-pink background with a copy of Year of the Tiger paperback in the center. Above and below the book are a pair of rainbow chopsticks from @umeshiso_ (on IG). On the right of the book is a tiger bookmark and is one round tiger sticker and one round tiger button. Floral decorations and a small rainbow decor are placed around the edges. Photo credit: @ziru.mo (on IG)<\/figcaption><\/figure>\nMy ICU Summer<\/strong><\/h3>\nWelp, beyond my control and carefully laid plans I became very sick and ended up in the ICU for 4 weeks this past summer<\/a>. It upended my life and I am still slowly recovering and healing. I truly hope 2023 will be better for me.<\/p>\nI didn\u2019t leave my room for weeks and Vivian the nurse arranged to have a RT carry my vent on a pole, following me as I took a loop around the ICU floor. It was such a rare treat and I spent a few minutes looking at the view by the nurse\u2019s station of San Francisco on a bright day with blue skies and clouds. I am probably trying to rest while plagued by doubts and uncertainty about the future.<\/figcaption><\/figure>\nPublications By Me<\/strong><\/h3>\nAlmost dying lit a fire under me. I shared my experiences in these three pieces. In many ways these pieces are like an epilogue for Year of the Tiger. More to come in 2023!<\/p>\n
I Still Have a Voice, KQED\u00a0<\/a><\/p>\nConstant Cravings: Life With a Feeding Tube, Eater<\/a><\/p>\n‘My Life Is in My Caregivers’ Hands’: Disability Advocate Alice Wong’s Vision for a New Approach to Health Care, KQED<\/a><\/p>\nDVP Highlights<\/strong><\/h2>\n <\/p>\n
Through the <\/span>Disability Visibility substack<\/span><\/a> (a free newsletter), I gave away books by 22 disabled, chronically ill, Mad, d\/Deaf writers.\u00a0\u00a0<\/span><\/p>\nProjects and Collaborations<\/b><\/h4>\n
Community As Home<\/span><\/a> portraits with Ashanti Fortson<\/span><\/p>\nSociety of Disabled Oracles<\/span><\/a> with Aimi Hamraie and Jen White-Johnson<\/span><\/p>\nPOD Access Initiative<\/span><\/a>\u00a0 – a website for disabled podcasters with Cheryl Green and Thomas Reid<\/span><\/p>\nPublished and wrote 6 blog posts<\/b><\/h4>\n
DVP: 2021 Year in Review<\/span><\/a><\/p>\nUpdate on Philips CPAP, BiPAP, and Ventilator Recall<\/span><\/a><\/p>\nHigh-Risk Pandemic Stories: A Syllabus<\/span><\/a><\/p>\nMay 2022 Philips Recall Summary<\/span><\/a><\/p>\nCrip Siblings: Interview with Chun-san (Sandie) Yi<\/span><\/a><\/p>\nMy ICU Summer: A Photo Essay<\/span><\/a><\/p>\nPublished 19 guest essays by disabled writers\u00a0<\/b><\/h4>\n
Disabled Deaths Are Not Your \u201cEncouraging News\u201d: Resisting The Cruel Eugenics of Comorbidity Rhetoric<\/span><\/a> by Ada Hubrig\u00a0<\/span><\/p>\nReading Storms, Embracing Life: A Remembrance of Neil Marcus<\/span><\/a> by Steven E. Brown<\/span><\/p>\nCare During COVID: Photo Essay on Interdependence<\/span><\/a> by Marley Molkentin and Kennedy Healy\u00a0<\/span><\/p>\nAbolish Long-Term Care: Nationalize Home Care in Canada<\/span><\/a> by Megan Linton and Sarah Jama<\/span><\/p>\nPerhaps They Won\u2019t Have Died in Vain: The GRIM Project<\/span><\/a> by Aislinn Thomas<\/span><\/p>\nHow radical acceptance of my disabled body made a mess (and clarity) of my gender acceptance<\/span><\/a> by A. Andrews\u00a0<\/span><\/p>\nMy Villain Origin Story: Break-up with My Disability Constituency Organization<\/span><\/a> by Rebecca Cokley<\/span><\/p>\nDisabled People Are Tired: Public Health and Ableism<\/span><\/a> by Christine Mitchell<\/span><\/p>\nMaking a Case for Self-Description: It\u2019s Not About Eye Candy<\/span><\/a> by Thomas Reid<\/span><\/p>\nTwo years into the pandemic, I\u2019m not sure if I can trust nondisabled people anymore: It feels like I am seeing a guy stick his head into an alligator\u2019s mouth over and over<\/span><\/a> by Anna Hamilton<\/span><\/p>\nWe Don\u2019t Talk About Generational Trauma, No, No<\/span><\/a> by Jocelyn Mondragon-Rosas<\/span><\/p>\nWhy I Won\u2019t Be Organizing Any In-Person Fundraising Events For the Foreseeable Future<\/span><\/a> by Ingrid Tischer<\/span><\/p>\nWhat Will Never Be Again<\/span><\/a> by Jane Shi<\/span><\/p>\nMy MS and Me<\/span><\/a> by Carolyn Hinds\u00a0<\/span><\/p>\nRest in Peace, Bitch Magazine<\/span><\/a> by s.e. smith\u00a0<\/span><\/p>\nTaking the Edge Off: Navigating an Ableist Pandemic Through Mixology<\/span><\/a> by Mary Frances Layden\u00a0<\/span><\/p>\nOn Madness<\/span><\/a> by Noah Strauss<\/span><\/p>\nRelease the Red Panda<\/span><\/a> by Sandy Ho<\/span><\/p>\n
I also collaborated with Umeko Motoyoshi of Umeshiso.com<\/a> offering my book and book swag with some gorgeous gay spoons and chopsticks<\/a>!<\/p>\n Welp, beyond my control and carefully laid plans I became very sick and ended up in the ICU for 4 weeks this past summer<\/a>. It upended my life and I am still slowly recovering and healing. I truly hope 2023 will be better for me.<\/p>\n Almost dying lit a fire under me. I shared my experiences in these three pieces. In many ways these pieces are like an epilogue for Year of the Tiger. More to come in 2023!<\/p>\n I Still Have a Voice, KQED\u00a0<\/a><\/p>\n Constant Cravings: Life With a Feeding Tube, Eater<\/a><\/p>\n ‘My Life Is in My Caregivers’ Hands’: Disability Advocate Alice Wong’s Vision for a New Approach to Health Care, KQED<\/a><\/p>\n <\/p>\n Through the <\/span>Disability Visibility substack<\/span><\/a> (a free newsletter), I gave away books by 22 disabled, chronically ill, Mad, d\/Deaf writers.\u00a0\u00a0<\/span><\/p>\n Community As Home<\/span><\/a> portraits with Ashanti Fortson<\/span><\/p>\n Society of Disabled Oracles<\/span><\/a> with Aimi Hamraie and Jen White-Johnson<\/span><\/p>\n POD Access Initiative<\/span><\/a>\u00a0 – a website for disabled podcasters with Cheryl Green and Thomas Reid<\/span><\/p>\n DVP: 2021 Year in Review<\/span><\/a><\/p>\n Update on Philips CPAP, BiPAP, and Ventilator Recall<\/span><\/a><\/p>\n High-Risk Pandemic Stories: A Syllabus<\/span><\/a><\/p>\n May 2022 Philips Recall Summary<\/span><\/a><\/p>\n Crip Siblings: Interview with Chun-san (Sandie) Yi<\/span><\/a><\/p>\n My ICU Summer: A Photo Essay<\/span><\/a><\/p>\n Disabled Deaths Are Not Your \u201cEncouraging News\u201d: Resisting The Cruel Eugenics of Comorbidity Rhetoric<\/span><\/a> by Ada Hubrig\u00a0<\/span><\/p>\n Reading Storms, Embracing Life: A Remembrance of Neil Marcus<\/span><\/a> by Steven E. Brown<\/span><\/p>\n Care During COVID: Photo Essay on Interdependence<\/span><\/a> by Marley Molkentin and Kennedy Healy\u00a0<\/span><\/p>\n Abolish Long-Term Care: Nationalize Home Care in Canada<\/span><\/a> by Megan Linton and Sarah Jama<\/span><\/p>\n Perhaps They Won\u2019t Have Died in Vain: The GRIM Project<\/span><\/a> by Aislinn Thomas<\/span><\/p>\n How radical acceptance of my disabled body made a mess (and clarity) of my gender acceptance<\/span><\/a> by A. Andrews\u00a0<\/span><\/p>\n My Villain Origin Story: Break-up with My Disability Constituency Organization<\/span><\/a> by Rebecca Cokley<\/span><\/p>\n Disabled People Are Tired: Public Health and Ableism<\/span><\/a> by Christine Mitchell<\/span><\/p>\n Making a Case for Self-Description: It\u2019s Not About Eye Candy<\/span><\/a> by Thomas Reid<\/span><\/p>\n Two years into the pandemic, I\u2019m not sure if I can trust nondisabled people anymore: It feels like I am seeing a guy stick his head into an alligator\u2019s mouth over and over<\/span><\/a> by Anna Hamilton<\/span><\/p>\n We Don\u2019t Talk About Generational Trauma, No, No<\/span><\/a> by Jocelyn Mondragon-Rosas<\/span><\/p>\n Why I Won\u2019t Be Organizing Any In-Person Fundraising Events For the Foreseeable Future<\/span><\/a> by Ingrid Tischer<\/span><\/p>\n What Will Never Be Again<\/span><\/a> by Jane Shi<\/span><\/p>\n My MS and Me<\/span><\/a> by Carolyn Hinds\u00a0<\/span><\/p>\n Rest in Peace, Bitch Magazine<\/span><\/a> by s.e. smith\u00a0<\/span><\/p>\n Taking the Edge Off: Navigating an Ableist Pandemic Through Mixology<\/span><\/a> by Mary Frances Layden\u00a0<\/span><\/p>\n On Madness<\/span><\/a> by Noah Strauss<\/span><\/p>\n Release the Red Panda<\/span><\/a> by Sandy Ho<\/span><\/p>\nMy ICU Summer<\/strong><\/h3>\n
Publications By Me<\/strong><\/h3>\n
DVP Highlights<\/strong><\/h2>\n
Projects and Collaborations<\/b><\/h4>\n
Published and wrote 6 blog posts<\/b><\/h4>\n
Published 19 guest essays by disabled writers\u00a0<\/b><\/h4>\n